| | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | I've had a number of biopsies (Hmm, this is #13 -- White spots started 15 years before my first tumor emerged) and they have all been 'awake', but they were all very accessible except this last one.
Thanks, David -- My daughter is coming for a visit over the weekend, so I'm not letting the wait put a damper on things.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Pete, I'm afraid I require photographic evidence of these alleged "hamsters."  - Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Pete,
I hoping the best...let's hope it's nothing, you are in my thoughts
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Pete, Best of luck with the biopsy result. Good to hear that your daughter is coming for the weekend to take your mind off the wait. Love the name of the new family additions but as there were only 3 Donald Duck nephews you settled on RatPhooey for the fourth BTW What did happen to ratatouille? I am having another operation on the 29th January re join between flap and tongue but a variation on the previous 4. (You have seen the photo of my problem) It is freaking me out a little and for the first time I will post a new thread of my own to see if anyone has had the same problem over next couple of days. Chears Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Oh ye of little faith! Wiki sez this about the Quack Pack (Hmm, that could be a backup name for Doctor Haakenslash and the Cutthroats!): "On a few occasions, there is a fourth nephew that appears, slipping through by a mistake of the artist. He has been named "Phooey Duck" by Disney comic editor Bob Foster. One short Egmont-licensed Disney comic explained Phooey's sporadic appearances as a freak incident of nature." http://en.wikipedia.org/wiki/Huey,_Dewey,_and_Louie I will post a pic when I take one -- I don't want to wake them when they are sleeping, but it's going to be hard to herd them into a group when they are awake... I am delighted at how much they are already cheering me up! The late, great Ratatouille was born in Florida at the Rodent Ranch (No joke; a commercial undertaking raising mice, rats, hamsters, guinea pigs, etc), traveled up the East Coast and out to the Maritimes and Newfoundland (which is pretty far East, by golly), back to Florida, across to California, wintered in Washington and traveled to Alaska in 2001, where he is buried near a lake, having lived about two and a half years which is pretty good for a snake-food tank rodent! [img:left]http://www.neon-john.com/Files/files/RORT/PeteNRat%20%28Small%29.jpg[/img] [img:right] http://www.neon-john.com/Files/files/RORT/Rat-asks-if-he-can-bring-his-teddy.jpg[/img] Cute stuf here: http://www.ratzrealm.com/index.htm
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | OH MY!!!!!! You werent kidding about the rat. Love all their names. Very nice pic  Hope all goes well with your tests. Its a scary time waiting for results. Glad you have some pals to keep yourself busy while waiting.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Oh Pete! Ratatouille was a handsome devil. I am tempted by the ratties, for sure, but I have a three species limit in my house - me, the rabbits and the cats for now.
Thank you for sharing that picture!
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | There was a lady at work that would adopt and take care of injured rats. All of her rats were handicapped in some way.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | My ex and I were at a company Easter picnic and there was going to be an egg hunt (planned by a non-parent) with one specially-marked egg which would win a live white rabbit -- Parents started walking up to the planner and telling her that SHE would have to explain to the winner, if it was their kid, that they couldn't have the bunny after all.
Long story short, we took the bunny home, locked it in the hall bathroom for three days and it picked a corner as it's habitual potty place, where we put newspaper. Had bunny for half a year or so, with dog, but bunny started chewing on all sorts of stuf and decided that since it was up on couch, it could pick new potty...
One Saturday, when as Dave Barry would put it, "There may have been some beer involved in this", I saw a small, unknown to myself or neighbors, child walking down the street pulling little red wagon. I asked the kid if he liked bunnies, then if he wanted one -- Last I saw of the kid or bunny was them turning the corner with bunny in wagon... Bet that kid's mom never let him roam again!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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