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#79256 08-23-2008 08:34 PM
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Ray1971 Offline OP
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Hi everyone,

I noticed a lot of us have/had or will have bouts of constipation. I was hit with it fairly hard after my second biopsy and surgery. I was really uncomfortable! I know laxatives work just fine, but good ole' prune juice kept me feeling regular in a better way. And if you really have it bad--one can kick it up a notch by adding a little bit of milk-of-magnesia to the prune juice...then you better watch out! Or if you can...just eat a couple of dried prunes here and there...My Mum-Mum is coming out in me...a wonderful grandmother she was...

Best Wishes,
Raymond


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #79270 08-24-2008 07:35 AM
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Ray,

One of the problems most of us encountered was the combination of the effects of concurrent radiation and chemo along with the Big C. Imagine the Big C when you are very weak, very nauseated, have no taste and can't swallow and your pain level is about a 9. Not a pretty combination.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #79281 08-24-2008 08:39 AM
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Ray1971 Offline OP
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Dave,

Point given...I'm not looking forward to the radiation Tx. For some reason pain meds block me up and make me feel awful...The prunes helped ease that...


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #79294 08-24-2008 03:02 PM
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Ray, the best thing I did for constipation was throw away my pain pills. I have been pretty good since. Pain is easier than the good old C.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #79301 08-24-2008 05:09 PM
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My radiation nurses told me to take "Natural Vegetable Laxative" pills (that's what Safeway puts on the label), aka Senna Concentrate -- The main ingredient is Sennosides -- Small brown pills that can be swallowed or ground up and PEG'd (Hmm, can PEG be a verb?) -- Works for me.

I found that I didn't need pain meds during the radiation as much as I did anti-nausea meds -- Like the pain meds, it's important to stay ahead of the 'need curve', rather than try to catch up.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #79321 08-25-2008 05:16 AM
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Pete,

I also abandoned my pain meds late in the game because I opted to deal with the pain vs the nausea and the constipation. It worked for me but everyone can react differently so you will have to find out what works for you.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #79324 08-25-2008 06:57 AM
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Ray

Everyone is different but for what it's worth here is my C story.
Laxatives were too unpredictable as to when they would take effect and after one close call after the mask being bolted down on the lead slab for radiation, I stopped them entirely. Instead I went to glycerin suppositories which worked every time within 20 minutes. I had the big C big time as the pain pills were essential so I could swallow plus the skin pain from the Erbitux & radiation were at the 9 level. I did ditch the anti-nausea pills mid way through radiation (ironically swallowing them triggered vomiting). The residents at the CCC were grateful they avoided being assigned "impaction" duty.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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