| Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | She tells me she's creative, not a numbers person.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | My entire series of XRT (37 treatments) was less than $43K -- It appears to me that she has gotten creative with the book keeping -- Have her spending habits gotten expensive recently, shopping trips to NYC and Miami, more cruise vacations than usual? -- What does she drive and how many times a year does she buy a new one? -- Does she have a copy of "Creative Accounting" in her bookshelves?
Worse, what if she has actually paid out that amount?!?
As you well know in your profession, it's hard for a client to see what's happening right under their nose -- Maybe it's time for an outside audit, perhaps even a forensic audit <g>. You may be an unwitting accomplice to MediCare fraud!
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Yeah, my total for neck dissection, 39 IMRT, 8 chemo and about 40 or so other visits totals about $275,000, of which I paid about $2,500 out of pocket.
I think your wife has the right number, just the wrong decimal point! ;-) Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Brian,
Can we create a list with approximate costs for different treatments?
IMRT PET/CT PORT PEG etc
The idea is not necessarily to go shopping but to be informed. It is unlikely that if you need a port that you would say .... you want how much for this?? No thank you! I was totally floored how much Tenet attempted to charge for the port. Note, the surgeon only gets a fraction of this, he was also rather intrigued by this. I was also surprised how much extra charges were accrued by the HBO treatment which was supposed to be covered by my insurance. Interestingly, they (same company) attempt to charge $345 for the 5 min the physician spent to check my ears. This turned out to be not required in the end. Even more interesting there were different physicians involved who were a) a lot cheaper and b) whose staff were apparently able to properly fill out an insurance claim. There were also rather significant differences in the PET/CT. Trailer, old equipment, Tech who get the date wrong and no head rest (for a head PET/CT) vs newer equipment, competent staff, nice facility at half the price..... nevertheless you have to convince the insurance company that the latter makes more sense. Before I come across at too negative I have to give credit to my insurance company which was accommodating... once you take action.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Great idea Markus.
I havent gotten too many bills. Im very fortunate that I have good medical insurance. I remember two bills I received for hospital stays. One was for 7 days and was about $27,000. My latest 10 day stay was $37,000. Out of those I was very lucky and only paid a very minimal co-pay of about $100 each. I never did get a bill for radiation or chemo. I have only paid the doctors their $10 co-pay for office visits.
So far I have yet to receive a bill for the HBO. Ive done 33 dives and have another 17 more to go. That has also been approved by my insurance. My HBO doc told me its very expensive, that it costs thousands to go thru HBO treatments.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | I'm currently undergoing HBO treatments. I had 13 dives at one hospital and so far the charges from that facility have total over $15,000 (average of $1,200 per dive). Switched hospitals and have completed 27 dives there, with 5 more to go. I haven't received any statements from that facility yet.
In 2006 I had 33 radiation therapy sessions. Total cost was $55,630.
My oral cancer saga began in June 2005 with surgery, and so far my medical bills have totaled over $130,000 for medications, tests (CT, PET, MRI, etc), doctor visits, treatment.
Fortunately I have good health insurance and my out of pocket expenses have been minimal.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I'm going to hire a Forensic CPA to investigate....Wait I'm a CPA...Ah, but she's my wife...but I can't afford not to have her spending habits investigated...but if she's been "creative" then I can't afford to hire anyone...I'm too busy to track how much she really spends, even if I could...She has been talking about retiring to the south of France when I do leave this earth...See this is the STRESS she said that I shouldn't live under...Who started this thread anyway!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | David That would be me. I also did wonder how you could be a two million dollar man. Just to keep this thread meandering from it's original focus on an outdated study (thanks again Brian for the RSS nudge as well as the heads up on cancer answers $ focus), I will try and shift it from your wife's decimal dyslexia accounting back to HPV. I have gotten some PMs asking if I was every tested for HPV. As I replied: "Nope Wanted biopsy tested but since insurance won't cover it, can't waste 6 or 7 hundred that is better for the dental bills. Tobacco and Alcohol highly unlikely since I didn't smoke and very casual drinker (happy hour at conferences or one drink at home)so it's HPV or maybe just bad luck." 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | You still don't have ANY taste? What about the dry mouth?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | yeah frustrating not being able to taste and one of the reasons I am still just 135 pounds at 5' 11". Still have not lost hope though. At least nothing tastes bad or metallic just blah & bland. Can't even taste the mint in the flouride gel although the label says it is there. I am getting good at distinguishing textures. The Dry mouth though is a lot better. I can even go an hour without sipping water. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | |
Forums23 Topics18,168 Posts196,925 Members13,103 | Most Online458 Jan 16th, 2020 | | | |