#78704 08-14-2008 05:31 PM | Joined: Aug 2008 Posts: 14 Member | OP  Member
Joined: Aug 2008 Posts: 14 | Wasn't sure where to post this. I hope this is alright.
I want to thank all of you for helping me to get this far. I love the way you tell it like it is.
I went back to the cancer center today and took a full page of questions. They were very inpress that I was so informed. I told them I had found this great site that has helped me. I would never have know what to ask without you.,
The cancer is stage 1, I get to keep my teeth and the bridge. The location being the chin area they can block the teeth. I got fitted for a mask today. radation will start in about 3 weeks. they cannot do IMRT because of the location. I'm not going to get chemo Iv, but chemo another way, not sure how. I know its not going to be easy, But I feel so much better. they also put me in touch with the cancer society, I can get someone to drive me to my apointments when I get unable to drive. A wig, if I need it and they are going to help in so many ways. The Nurse+ thinks medcare will cover the ensure or what else I need. Everything is falling into place, takes a load off my mind.
Thanks again for your replys to my post, it helped so much, just what I needed at a very low point in my life.
wilma
mouth cancer Diagnosed July 11th.2008
Surgery on July 24th. to remove cancer between chin and gums.
pet scan being set up for end of month.
Ratation and small amounts of chemo will start in about 5 weeks after mouth has healed. will need a feeding tube.
66 year old female,
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Wilma:
Glad to hear that everything is falling into place for you. The American Cancer Society was a great help to me while I went thru treatments. I had a driver a few times and they helped me with the medication co-pays. Start lining up your friends and family to help you with different things.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Did they mention what type of radiation they plan to use?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2008 Posts: 14 Member | | OP Member
Joined: Aug 2008 Posts: 14 | they did tell me all about it, but I don't remember the name. he said they will put it under the chin, and it will be directed to the one location, Will know more about the lymp node in the neck after a pet scan on the 23rd. or 30th. them are the two days open. I may need radation on the neck. A lot of wait and see.
Wow you ride 120+ a week, We use to ride 5 miles, 3 or 4 times a week, that was the best I could do. Haven't done that in a few years.
mouth cancer Diagnosed July 11th.2008
Surgery on July 24th. to remove cancer between chin and gums.
pet scan being set up for end of month.
Ratation and small amounts of chemo will start in about 5 weeks after mouth has healed. will need a feeding tube.
66 year old female,
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