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| | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) |  "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Welcome Bill. You certainly have found the right place as lots of us have similar experiences - sometimes more than once!
Sounds like you are right on top of things but it truly does take awhile for the truth to sink in. I've never spent much time on "why me" either, but then I did smoke. There is so much more beyond "why me", and this is an AWESOME place to post all your questions and thoughts and fears.
Are you out of hospital already?? At any rate, look forward to hearing more from you.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jul 2008 Posts: 15 Member | | Member
Joined: Jul 2008 Posts: 15 | David - good advice about the HPV test, I did not know that. I was planning to ask my oncologist about it on my next visit, I had assumed it was a simple blood test. I guess I'll call and see if they can start the discovery process sooner. Question - does the presence or absence of HPV have an affect on the chances of recurrence or the choices of treatment? Tina
Partial Glossectomy (Right) March 2007, Clear Margins, SCC T1N0M0
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Bill - If you or your doctors need it this link http://pathology.jhu.edu/labservices/hpv.cfm is on the bottom of the HPV page of the OCF main site http://www.oralcancerfoundation.org/HPV/index.htm. They can test your tissue samples for your doctor.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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