| | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Christine,
I am so sorry that you seem to be slipping backward on your recovery efforts...so frustrating.
Sending prayers and positive thoughts your way,
Hugs, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I will be ok, I always am ok no matter what. The anger of 'why me' never hit me throughout all my battles. I was always the one who said, whats next, lets fix this so I can move on. My goal has always been to get back to normal and regain my life again. This set back has me discouraged. I worked so hard the past few months and now have gone backwards to where I started again. My thinking has begun to change from the 'lets fix this' attitude. Im very troubled by how quickly the past 4 months of work has just erased itself like it never happened. The part that bothers me the most is that Im losing my positive attitude. I guess everybody gets to a point where enough is enough and reality hits you hard. Im sure glad that I have the kind and wise people of OCF to listen to me. It makes me feel like Im a big sissy to complain since there are so many worse off than me. Trying to rationalize this isnt always easy. Thanks for listening 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | I've had setbacks through my road to recovery, and it is easy to get discouraged. I guess I felt that if I do everything the doctors tell me to do, I will make continued progress. But unfortunately there are a few bumps in the road.
I'm sure this setback will be shortlived. You are under good medical care, and you do have the right attitude (even though you lost if for a few days), and you can turn this around. We are all praying for you.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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