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davidcpa #78293 08-07-2008 03:34 PM
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2008
Posts: 706
I actually had to go on the drug manufacture's websites to get the full list of side effects from the various chemos my husband was on. I had one doctor tell me that my husband probably had the flu after the induction of Erbitux. When I went on the website it stated that flu like symptoms were typical. The charming doctor said she'd never heard that. Makes ya wonder.

Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
suemarie #78300 08-07-2008 04:19 PM
Joined: May 2008
Posts: 551
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2008
Posts: 551
Holy Moly! Reading stories like these makes me appreciate my medical team all the more! They practically hovered over me during my first infusion of Erbitux, and the second I said I felt 'off' it was stopped and I was given a dose of benadryl. Every week I'm asked about tingling and my hearing and given a pretty thorough head-to-toe exam.

I shouldn't be, but I am constantly amazed at the inconsistency of medical care in this country.


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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