#77438 07-24-2008 01:03 PM | Joined: Jul 2008 Posts: 1 Member | OP Member Joined: Jul 2008 Posts: 1 | ORAL CARCINOMA -
After several surgical procedures to excise cancerous tumors from floor of mouth, under tongue and from gums spanning 2000 to 2005 a recurrence in 2006 was treated with radiation. No recurrence for 19 months. Surgeries and resultant grafts resulted in some loss of tongue mobility and radiation resulted in loss of taste. Cannot maneuver solid food in mouth so as to properly chew and swallow thus confined to largely liquid diet and without sense of taste have zero appetite. Anyone out there with similar problems?
John P. | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I don't have your particular problem but I'm sure others will post soon.
My only comment is have you tried Carnation Instant Breakfast VHC which has 560 calories in a small 8 oz can and is nutritionally balanced. I know when I had no appetite it helped by getting the calories in me. I mean only 4 cans and you get 2240 cals which is enough to maintain weight in a "normal" person.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | John, Zero taste, is that your experience even with extremes such as lemon, salt, spicy and bitter. (..and I mean extremes like biting into a fresh lemon etc.) Some of my patients have found that extremes help them to slightly improve their situations. I have also been told that smelling food will help them in their quest to taste again. Some research has lead to the fact that smell is an important part of taste. The brain will sometimes rebuild senses to some extent if stimulated properly. This is similar to salivary glands rebuilding when stimulated. I know every experience is different and every person responds differently I'm just trying to offer some suggestions. If I can answer any questions for you please contact me. Cheers, Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
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