#77270 07-20-2008 11:11 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OP  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I was recently asked to join the free networking site facebook ( www.facebook.com) And I am starting to add friends to my profile and network there. I also started an OCF group on facebook. If you are not familiar with how web networking works, this is a viral way of getting connected with people around the country, spreading the word about your ideas, (oral cancer for instance) and in the case of OCF getting the foundation and its work noticed. I urge those of you that have time to, to take the 10-15 minutes it takes to set up a profile and start networking. You can all connect to me as your first connection. If you want to see what a profile looks like you ( without being a free member with a profile of your own can see a very abbreviated version of mine by just doing a search for me when you get on their site). Once you fill our your own profile you can see the whole enchilada. The web is becoming a viral way for ideas and connections to spread. Nothing wrong with working all the angles.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | I been on face book for a long time now.It is the most wonderful way of keeping in touch with family and friends,and the Mouth cancer foundation has a group network on there too.
i have joined the group this morning and added brian as a friend.
I found brian by searching oral cancer foundation,because there are an awful lot of brian hills on the site.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Thanks to all of you that have signed on today. Seems we have a bunch of facebook people on the OCF site, and one who spent the 15 minutes to fill out their profile today. I am communicating with T. Boone Pickins as a result of my facebook profile. It is amazing who you can get connected to there. I hope that we can get a bunch of people on the OCF part of it that are not just patients, but dental students, doctors, and more that can help us network to get events and more done. This is a true grassroots mechanism to get things happening that goes beyond what those of us can do from the immediate OCF community.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Brian,
I basically signed on to Facebook last semester because it was required for one of my classes. I've never really spent a lot of time out there, but I will now. It's nice to be able to put faces with names and it makes the connections here a lot more personal. Thanks for creating the group on there!
Enjoy your week!
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
I am now a new member of Facebook. My full name is Christine Brader. I hope to now see who all my OCF friends are, putting a face with the names.
Thanks for all you do Brian.
Christine
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | I joined and invited my sisters and some friends as well to the group.
How about myspace next Brian!?
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I'm not a my space user. But I am open to anything that will virally spread OCF's message. You want to help us get started there?.... and this time I will follow your lead....
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | my sisters and I would love to. It can reach more people than facebook! It can also help with the younger crowd. I'll talk to the girls tomorrow and we can design a layout for it.
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Amy:
Let me know if you are able to get something going on myspace, Im already registered there.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi guys
I dont know about anyone else but it sure would be useful to me if you could put your screen names somewhere when you sign up for facebook.I am struggling knowing who i know and who i dont lol.Its wonderful to see faces at last to put with the names that have been part of my life for so long now.(margeret you are gorgeous!!!)so just to start the ball rolling,i am LIz Read.
Jim where are you? get signed up so we can all get a look!!!!
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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