#76486 07-03-2008 08:29 PM | Joined: Jun 2008 Posts: 14 Member | OP Member Joined: Jun 2008 Posts: 14 | i had a biopsy about 1 month ago that said displaysia. The roof of my mouth is sore and it taste a little funny. I also have these little red bumps that come and go in my mouth. How would I know if displaysia turns to oral cancer?
Thanks Tracey | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | The only way to know will be through addition biopsy. If you choose not to have this removed, (some doctors laser things off, some want to watch them) please look at it regularly (I do not mean annually, I mean at least once a month) for changes in color, texture, size, etc. If anything changes, please get another doctor opinion and another biopsy. But there are no other methods right now for determining that dysplasia will convert to malignancy. In oral dysplasia only about 25% of them treated or not ever move further on to malignancy.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Jun 2008 Posts: 28 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2008 Posts: 28 | Tracey, I don't really know what dysplaysia is. I tried to look it up but didn't understand the things I found. So I don't know if this will help - some dentists now have a test for oral cancer caused Visilite. They put some stuff in your mouth and shine a special light in. Cancerous and I think pre-cancer cells show up. My dentist is screening all new patients with this now. Too bad I didn't find this dentist until after my first partial glossectomy. If it wasn't the holiday I would call her to find out the relationship with dysplaysia. I hope this can help you. Happy 4th of July !! Karen
Karen-age 47 5/07stage 1 tongue right side partial glossectomy 3nodes removed on right. 6/07 didn't get it all-2nd partial glossectomy. 11/07 stage 3(?) partial glossectomy,flap.all nodes removed on right side. 1/08 peg tube. IMRT 39tx,chemo-cisplatin. 5/08 left side 1 lymph node w/cancer - removed
| | | | Joined: Jun 2008 Posts: 14 Member | OP Member Joined: Jun 2008 Posts: 14 | dysplaysia is pre cancerous i know. My biopsy saidit was mild to moderate. I did smoke for about 7 years and never again will i do that. Im just scared that my dysplaysa will turn to oral cancer and im not going to know what to look for. Right now ive got a few things going on in my mouth. Karen how did your cancer start out?
Thanks Alot! Tracey | | | | Joined: Jun 2008 Posts: 14 Member | OP Member Joined: Jun 2008 Posts: 14 | Happy 4th of July to all! | | | | Joined: Jun 2008 Posts: 28 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Jun 2008 Posts: 28 | I answered Tracey in her private message in more detail. But for anyone else who needs to know, mine started out with a sore on my tongue that wouldn't go away and sometimes made it painful to eat.
Karen-age 47 5/07stage 1 tongue right side partial glossectomy 3nodes removed on right. 6/07 didn't get it all-2nd partial glossectomy. 11/07 stage 3(?) partial glossectomy,flap.all nodes removed on right side. 1/08 peg tube. IMRT 39tx,chemo-cisplatin. 5/08 left side 1 lymph node w/cancer - removed
| | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | Tracey, here's how Brian answered me more than two years ago when I asked about dysplasia: [quote]Dysplasia are those cells which are no longer normal, but they are not really malignant yet ... an in-between state, so to speak. Dysplasias also do not always go completely over to the dark side, but they are a step in that direction ... and having them removed, or watched very regularly, is prudent. Dysplastic leukoplakias can often return after surgical removal, many times done with a laser, sometimes via a blade excision. Keep an eye on things even after the removal from now until forever.[/quote] In my husband's case, the pathology report of the initial biopsy by an oral surgeon (which returned a diagnosis of moderate dysplasia) warned of a possible "skip effect," meaning that cancer cells could be in areas that were not part of the biopsy. He had an excisional biopsy of the whole area of concern several weeks later and was diagnosed with SCC in situ, with a tiny bit superficially invasive -- the very earliest stage. He has required no further treatment but is checked regularly.
As Brian noted in his post, most dysplasias do not turn malignant. But you do need to keep on top of this and see an ENT -- preferably one who specializes in oral cancer -- if you notice any changes.
-- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | Joined: Jun 2008 Posts: 14 Member | OP Member Joined: Jun 2008 Posts: 14 | OTOLARYNGOLOGY HNS is a new doc on Monday that i am going to see. Hopefully he will know more about what is going on here. Im so scared that im going to have oral cancer and it will be too late. I am only 29 I have a husband and 3 children. I am not ready to go anywhere anytime soon! All i can do is ask god for help and send me to the right dr. Someone who knows what they are doing. Thanks hun for the info. | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | HNS I believe stands for Head and Neck Surgeon and while it's best to get many opinions from different related doctors, know their specialty so you may understand where their opinion comes from, i.e. a surgeon will more than likely recommend surgery which may not be the consensus after consulting different doctors of different orientations to the same problem.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Karen,
Neither ViziLite nor the VELscope can provide a diagnosis. Both use different methods to check tissues. Any suspicious areas that are noted with the use of either of these "tests" must be biopsied in order to get a diagnosis.
I Hope this is helpful.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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