| | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Sue, That also happened to me a couple of times from ulcers in my mouth caused by the chemo and radiation. The first time (also in the MOs office) it really freaked me out. It is worth remembering that a little blood moixed with anything else, such as saliva, can look like a lot more than it is. Nonetheless, don't take any chances and call 911 if it happens to you at home.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Sue,
I can't add any advice to what's already been said having had no experience like yours, but just wanted you to know that you are in my thoughts and prayers daily.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | | OP "OCF Down Under" Senior Member (100+ posts)
Joined: May 2007 Posts: 132 | Thanks Nelie and Jerry,
I have had no problems today with bleeding, so I'm hoping it was a one off. I've stuck to cold drinks today, but if my RO says it's ok I'll start back on some warm soups tomorrow (I crave some variety!). I have to say that out of everything I've been through in the past 16 months this was probably the most scared that I've felt - thankfully it was only 10 minutes of terror!.
Sue
55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | | Joined: May 2007 Posts: 132 "OCF Down Under" Senior Member (100+ posts) | | OP "OCF Down Under" Senior Member (100+ posts)
Joined: May 2007 Posts: 132 | Hi everyone!
I can't believe that I have only 5 more rads and 1 chemo to go! It feels so good to be within sight of the finishing post.
This has been a tough 5 weeks so far and while I know that the worst may not be over yet - I feel confident now that I will make it and be stronger for the experience.
I have been going through mood swings, severe mucositis, severe constipation, burns, tiredness etc. I have avoided having either a PEG or a naso-gastric tube by keeping well hydrated and eating regularly - with the significant help of lignocaine and other drugs.
My mouth and throat are sorer this week but I am better at pain management now and my RO was impressed by how well I am doing considering the collaterol damaage that exists internally and externally in my mouth, throat and neck. Given my relatively low dosage levels of morphine she seems to think that I have a much higher tolerance for pain than is normal. This has to be a good thing with this type of cancer!
Anyway I'm doing well, except for the occasional emotional overflow, and very much looking forward to the end of next week!
Thanks for listening!
Sue
55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Sue,
Congratulations on your strength in getting through your treatment so far and your great attitude. With the end of treatment so near, I feel your excitement.
So much has happened since we last emailed each other towards the end of last year. I will be heading out on a 2 week vacation tomorrow and will be off the forum until I get back. I will be thinking of you, especially next week, when you complete your chemo and radiation.
I wish you a speedy, uneventful recovery.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Sue,
You are my hero!! That's the key...staying hydrated and nourished but most of us learned the hard way.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Sue, you have the attitude of a winner . Go gal go as you will whip this real soon I bet.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Sue, you have the attitude of a winner . Go gal go as you will whip this real soon I bet.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Sue I hope that this next week passes quickly. That light at the end of that tunnel is getting closer. Wishing you lot's of sunshine  when you get there. Will be thinking of your during this coming week as I have been after reading your post's over the last year. Luv Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | |
| Forums23 Topics18,170 Posts196,933 Members13,106 | | Most Online458
Jan 16th, 2020 | | |
|
