Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#74179 05-10-2008 10:23 PM
Joined: Apr 2008
Posts: 117
Likes: 1
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Apr 2008
Posts: 117
Likes: 1
I saw a dentist who specializes in cancer related dentistry. He checked me out, made trays, made a spacer, etc. He also told me to make sure there were no food particles in my mouth before radiation. I think he said it causes more burn.

So I did some checking after I rinse, brush, and floss. There are still particles in there that show up if I rinse again. And again.

Has anyone found a good way to get all particles out. Maybe a waterpik, or something else?


Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Waterpiks work great - I wore mine out.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
That's interesting. I was never told that re food particles and you're the first poster that has mentioned that since I've been on this site. I have always been fastidious about my oral hygiene practices but I remember not even feeling like brushing my teeth towards the end of Tx and after week 3 I wasn't "eating" anything so flossing was not considered important to me either.

My point is, I don't think I would go crazy trying to get every last particle out.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Andrew

You may want to ask your dentist about keeping the flouride trays in during radiation. My ENT and the CCC team insisted I see a specialist dentist prior to treatment who has had lots of experience treating radiation damage and Post treatment issues. While he gave me the all clear, his suggestion was to ALWAYS wear the trays during radiation since I had so many fillings and the "scatter" effect would otherwise end up with additional damage to my gums and mouth. Made sense to me since the CAT scan that first caught the tumor had radiologist notes that ".. extent of this lesion is difficult to discern secondary to streak artifact from the patient's dental fillings..." Made the mask a tad more smug, but strangely provided a psychological boost like putting in the mouthgard before sparring practice. Like David, food particles were not an issue for me at all but that's because I soon was living just on Ensure Plus which left no debris.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Apr 2008
Posts: 117
Likes: 1
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Apr 2008
Posts: 117
Likes: 1
Charm2017,

Interesting comment about the trays during treatment. I'll ask the dentist about this.

So how did you do this? During treatment, did they have fluoride in them? Were you also told to use them at home, with fluoride?

BTW, the dentist made me a device that I'm supposed to wear during treatment. It keeps my upper and lower teeth separated, and it has a hole I'm supposed to keep my tongue in so it's out of the way. Did you use one of these?

Andrew


Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
I started using the trays w/ fluoride a month pre Tx but I was never told to wear or not to wear them during the rad. I was told to use them once a day, at night before sleeping. BTW I still use them and I probably will for the rest of my life per my dentist.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Andrew

No special devices for treatment, just the plain EMPTY fluoride trays that I put in right before going into radiation room. Sounds like you have a more specialized appliance so you may not need to wear the trays too. I did and still do and the dentist says I will for life: put fluoride into the trays at night before I go to bed. Heads up: during the middle of the radiation treatment my mouth was so sore that I could not bear to put in the trays and the fluoride burned also so I just quit for a while doing the nightime routine and did it a little longer in the day whenever my mouth felt better for a bit.
GOOD LUCK and of course PLEASE check with your Dentist and follow his/her advice.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
I used cotton rolls that were provided by the RO nursing station They also have mouth guards for that purpose - they seemed to help a little.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Joined: May 2007
Posts: 666
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 666
My dentist made me a contraption that was custom fitted/designed to keep the tongue immobile so that it got the desired rad dosage. I do not think that my RO used this before, and it was a first for my dentist who fortunately made this overnight (to be used for the PET scan/rad planing and subsequent treatment). Now they are doing this routinely.
I also used cotton rolls but these were used to get my lips AWAY from the radiation field. That of course has to be ok with the RO.

Re scattering x-rays.
I seriously doubt that a plastic tray (or cotton rolls) will be able to "absorb" x-rays in the MV range!
The xray energy used for CT is in the "whimpy" kV range where you will get artifacts from dental fillings... if you did use a MV CT there are no artifacts. IMRT uses x-rays in the MV range.

Markus




Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Joined: Apr 2008
Posts: 117
Likes: 1
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Apr 2008
Posts: 117
Likes: 1
Just a follow up. The onco dentist told me not to use a waterpik during treatment. I didn't ask why.



Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
Page 1 of 2 1 2

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
iMarc845, amndcllns01, Jina, VintageMel, rahul320
13,105 Registered Users
Forum Statistics
Forums23
Topics18,170
Posts196,933
Members13,105
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5