#7237 03-14-2006 02:58 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All, After some gentle prodding my some friends of mine I have decided to try Erbitux. I had my first treatment on Monday. Had a headache during the infusion but it went away shortly after treatment was over. Hoping I don't suffer some of the nastier side effects from this drug. I have been so lucky with them from all the other treatment. Let the luck continue. Have lost about 80% of the hearing in my right ear the last month or so. The tumor and or a fluid build up is causing it. Treatment is still purly pallative but I will be around for awhile yet. Thanks for all your support!!! Love Ya, Danny Boy "Go Badgers"
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#7238 03-14-2006 03:06 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Danny, I hope the Erbitux is easy on you but hard on the cancer! You're in my thoughts. Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#7239 03-14-2006 03:35 PM | Joined: Mar 2005 Posts: 20 Member | | Member
Joined: Mar 2005 Posts: 20 | Go for it we are all pulling and praying for you...keep us informed of your progress | | |
#7240 03-14-2006 05:07 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Danny Boy,
That's great news. I understood your decision to stop treatment, but I am thrilled that you have chosen to keep on trying.
My prayers are with you and I look forward to hearing about some positive progress.
Jerry
PS Keep those jokes coming.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7241 03-14-2006 07:03 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | The human spirit is alive & well in you Danny! Maybe the Erbitux will work! I hope you can smile more than not through all of this shit. Your friend, Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#7242 03-15-2006 04:27 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Danny
What a warrior in the fight against this, "bastard of a disease", as you so rightly named it.
Way to Go Danny, we are really happy to be the cheerleaders on Danny Boy`s team.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#7243 03-15-2006 04:52 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | I'm behind you regardlees of your decision.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#7244 03-15-2006 07:49 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Way to go Danny. Here's hoping it kicks this cancer in the butt. We're all pulling for you to become the next poster boy for Erbitux. Take care, Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#7245 03-15-2006 01:44 PM | Joined: Mar 2006 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2006 Posts: 27 | Danny,
All the best and good luck.
Praveen | | |
#7246 03-15-2006 03:09 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Danny Boy, I am so excited to see the news. You're tougher than cancer and I know you're giving it your all to kick this mother fu*ker in the ass. Go Erbitux and Go Danny! Love ya, Dave
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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