#7214 03-14-2006 12:43 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all,
Today is 2 years since I finished radiotherapy, and yesterday I got the results of my first PET-CT scan...all clear! The ENT doesn't know why my parotid is enlarged (the radio should have shrunk it). I can have it surgically removed, but it's in the radio area, making it awkward. I don't think I'll bother, just keep taking the occasional painkiller.
Cheers!
Tizz
(who can put away those nightmarish thoughts for a while)
End of Radiation - the "Ides of March" 2004 :-)
| | | 
#7215 03-14-2006 12:57 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Meredith
I was so happy to read your post...that is terrific news. We have missed you around here.
Cheers back at ya!
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
| | |
#7216 03-14-2006 02:45 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Nice to hear from you Tizz! So happy you got good results from the scans. Keep in touch,
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
| | |
#7217 03-14-2006 05:12 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Meredith,
Welcome back and congratulations on the great news.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#7218 03-14-2006 06:17 PM | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 155 | YAY!!!! Thanks for sharing
Hugs Denise
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
| | |
#7219 03-15-2006 04:50 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Good news is always good to hear...
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
| | |
#7220 03-15-2006 07:55 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Ah, there you are Tizz. Congratulations on the all clear. Nothing like that to 'make your day'.
How are the root canals doing? I keep procastinating calling my dentist to get my teeth capped because I'm afraid he may have to do two root canals to do it.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
#7221 03-15-2006 10:33 AM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Eileen,
I've only had the one root canal done (effing expensive!). Took 3 or 4 visits - I have weird teeth and roots - and it still hurts a bit, but then again is that perhaps from the others going out in sympathy? :rolleyes: And my dentist asks me why I don't like seeing him...dentists, I'm sure are sadists (sorry Jerry).
All I can say is good luck Eileen, and when I have more moolah I'll visit my sadist again, (lie back and think of England as they said in old Pommy movies)....
Cheers!
Tizz (aka Meredith)
End of Radiation - the "Ides of March" 2004 :-)
| | |
#7222 03-15-2006 01:23 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | You guys are unkind. They donnot teach sadism in dental school. My patients all love me, especially my grandkids.
Seriously, I know we dentists get a bad rap and unfortunately, as in any field or profession, there are some bad apples. People always "talk" about their bad experiences and that's why I always tell my patients to spread the word, eg that the root canal DIDN'T hurt and get us some good publicity.
And Eileen, as you know I'm just across the river...let me prove to you that I speak the truth.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#7223 03-15-2006 02:47 PM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Jerry,
I had a "bad" dentist as a child, he had his assistant and my dad pry my mouth open to pull a tooth so I wouldn't need braces later.
I was afraid of dentists until I married and my husband's best friend from grade school on was our dentist. He was the most compassionate and caring man, and died too young from liver cancer. He was treated at MD Anderson. My dental check ups always included lots of hugs.
The gentleman who bought his practice is the one I credit with saving my life. He walked me over to the oral surgeon who got me in immediately and did my biopsy by putting me first on a busy surgery day and having his entire staff come in early to take care of me. Early detection from competent, caring people like yourself enabled me to have a new normal that isn't as tough as others have been. Retire to Florida, would you please?
Fondly,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
| | |
#7224 03-16-2006 07:46 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | The dental office just called and I made my appointment to get the core build-ups I need before I get the caps. This guy is really gentle and everyone loves him. He sends people elsewhere to get the root canals, which I'm praying I'm will not need. There is nothing wrong with the roots, it is just my teeth are so small, he is afraid he will have to get to close to the nerve.
Jerry,
Thanks for the offer. I'm hoping I don't need it. I'm certain all your patients love you. I've never understood people's fear of dentists. I've mostly gotten good care.
Well let's get off this subject and back to congratulating Tizz on her all clear.
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
#7225 03-17-2006 02:08 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Thanks for the congratulations folks, and hopefully the colololonoscopy will be clear also (next Wednesday). Cheers! Tizz P.S Jerry, do you receive lots of Xmas cards? My dentist only had a few on display  (don't hit me please!)
End of Radiation - the "Ides of March" 2004 :-)
| | |
#7226 03-17-2006 04:17 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | You know, Tizz, thinking back over my 65 yrs., I don't think I ever sent any of my dentists a Christmas Card.[ didn't like many of them either]  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#7227 03-17-2006 05:24 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | OK We've trashed the profession enough. Let's move on. Please do not forget that we need the dental community to change the paradigm of early detection which is not currently taking place.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
#7228 03-17-2006 05:27 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Lisa,
It's great to hear your warm fuzzy stories about dentists. Does my heart good. I've read so many negative stories here. No plans to retire to Florida as I love skiing too much and my kids and grandkids live in NJ.
Eileen,
Hope things continue to go well with your dental treatment. People's fears of dentists usually come from a previous bad experience. Hard for someone to understand that never had one. You are lucky. BTW got off an email to try to get train info for you for the NYC walkathon.
Meredith,
Many years ago we switched from x-mas cards to Thanksgiving cards. Out entire front desk area gets plastered with with cards and it gives us a jump start on the holiday season.
Good luck on the colonoscopy.
Had some good news myself this week. Had my first annual chest x-ray and all was clear. Today is the first anniversary of my biopsy. Hard to believe.
Jerry
PS Meredith - - The first trip my wife and I are planning after retirement (about 4 years) will be to Australia. Hope we can hook up.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#7229 03-19-2006 06:20 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Congratulations Jerry, we all need good news every day ...and when you come to OZ, make sure you contact us. Bill and I live on Sydney's Northern Beaches, one of the best places in the world (ask Tom Cruise, John Cleese, Bowie, "Babe" Watch stars, Matrix actors, and heaps of others)...alas, us poor folks can't afford Palm Beach and the like...but we're not too far away though! Be consoled, I really do like my dentist and previous ones, it's just the procedure. My current one appreciates any info I have imparted to him, and the print-out of you and Brian in the newspaper. Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
#7230 03-21-2006 03:29 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Meredith,
Must be great living in OZ. Retirement looks so far off, but time flies so quickly and I marvel at how fast my grandkids are growing up.
Perhaps as I get closer to retirement I might feel more comfortable taking off for a 3 week vacation and can get there sooner. We would like to get to New Zealand too, so I think we'll need 3 weeks. How's the weather in July and August? With my wife being a teacher, that is the only time of year that we can get a long vacation in.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#7231 03-21-2006 04:56 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Dear Tizz and Jerry - since this post has gotten so far around in subject matter, I guess this story won't hurt anything ( except perhaps my image).
It
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
#7232 03-22-2006 01:04 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Brian, just wondering where your wife was in this "dream retirement scenerio?" Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#7233 03-22-2006 01:07 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Brian, I wonder if that guy is still alive, our sun is very vicious in the UV factor. Melanoma country  Had that dreaded cololololonoscopy yesterday and all was clear - amazing, as 2 direct family members had bowel cancer (father and his mother). Soooo, with clear H & N scans and bowel, there's nothing wrong with me? At least my mother has less to worry about now, and will have more strength for herself (she has advanced ovarian cancer). Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
#7234 03-22-2006 03:56 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hey Brian,
It's fun getting off the subject once in awhile. A little humor on the forum goes a long way. After reading about your "never happened" retirement plans, I've decided to make that trip to Austailia earlier than planned. Might extend it a little longer, too.
Meredith,
Happy to heat the colonoscopy was good.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#7235 03-22-2006 05:04 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | JAM..it all occured BI (before Ingrid).
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
#7236 03-23-2006 03:40 PM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | I've been AWOL from the forum for a while....I see what I've been missing. :-) You all always could make me smile. haha
Meredith, congratulations on the clean screens. Talk about smiling!! woooohoooo
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
