| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | David, now I know why you are so happy. Wifey makes your drinks for ya. LOL J/K but had to say something. I hope you are doing well as it looks most of us are. Have a great day all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | To go back to the original question - yes, mouthwashes and medications containing alcohol, such as Nyquil, should be avoided. If fact I have read guidelines, from Hopkins I believe, even suggesting that drinking beverages too hot or too cold can also have a mutagenic effect. Anything that can irritate the squamous cells in the throat is suspect.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | It still makes me wonder with all the billions of people that smoke and all the billions that drink and all the billions that drink and smoke and all the billions that are exposed to HPV why are we so lucky. What is it within us or what makes us take the same ingredients and have it turn into Oral Cancer? Is it our genetic makeup, an extra chromosome, a missing one? I just want to think that we all share some common "thing" that makes this make sense.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | If you could figure that one out Dave, you'd be a wealthy man.
Does kinds make one re-think playing the lottery - Certainly beat the odds on this one......
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | [quote=Gary]To go back to the original question - yes, mouthwashes and medications containing alcohol, such as Nyquil, should be avoided. Anything that can irritate the squamous cells in the throat is suspect. [/quote]
So why do we still see Dentists and other promoting some of these products? Seems to me that 30 seconds 3-5 times a day would do as much or more damage than a casual drinker.
Kevin
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I guess that's why My RO says that this Cancer I have is Unique. LOL Aren't you all glad that we are special? Damn those chromosones anyway. Maybe we should have been born Nasty, Dirty , Mouthy , Boring and ugly!!! LOL Have a great day all and make the best of it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Kevin, ignorance comes to mind and the fact that they are given those huge bottles for promotional purposes. My dentist has a 1/2 gallon sized dispenser of alcohol containing mouthwash in his restroom. David - only 10% of people who drink abuse alcohol so that must be factored in. Immune system integrity as well as environmental factors must be considered as well - many, many variables! Then, as you well know, add HPV to the mix. Smoking is still considered the leading cause of preventable death. My H&N surgeon told me it was all a matter of "luck"...
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | The cruel irony: you are a unique individual, just like everybody else. (you're the same but not the same)
You have to consider volume of exposure and duration. Couple that with individual genetic predispositions. If someone quits using Nyquil on the few days of the year they have the flu, I don't think that they are avoiding anything...they are only dealing with symptomology of influenza that they wouldn't have to deal with if they used it.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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