| | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Jim- The doctor told me yesterday that exhaustion wasn't a side effect of the Erbitux. I'm glad I read your post because my husband falls asleep at the drop of a hat and I know that the treatment is a part of it. I can't believe that any kind of treatment that treats you systemwide does not wear you down. This site is so great for validation-I wish doctors would have to come here so they could really understand what patients go through. Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Mar 2008 Posts: 3 Member | | Member
Joined: Mar 2008 Posts: 3 | a healthy hello to all, may god keep you safe, and at peace. I had surgery 2/14/08, i was the valentines present to all the nurses  . I have acinic cell adenocarcinoma, prescribed 35 radiation treatments. I have seen other prescriptions, such as cisplatin. I am using chinese herbs that treat cancer befor i start radiation. I am trying to research what else i can do to fight this. I live in ft myers fla/54/male. Is cisplatin something i should consider using ? Thanks to all...skifan1954
acinic cell adenocarsinoma , removeral of the poradid gland, radiation only (35 treatments @ 5 min run time). age 54/m/fla
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Skifan,
First off what surgery did you have? Second, other than the rads, what have your doctors prescribed and lastly, where are you being seen?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Skifan,
Welcome to OCF. There are many people here that know a lot about treatment options and effects and they will have a whole host of information for your consideration. My treatment plan ended with surgery so I don't have much in the way of advice but wanted to let you know you've come to the right place.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Skifan - ditto to all of David's questions. My husband has salivary gland cancer and it is very rare and hard to find others with the same cancer. Give us more details on your situation and we can converse more helpfully.
This is a great place and I know you'll be happy you've found the site.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Skifan,
First off, welcome to the forum. Sorry you have to come here, but glad you found us.
You need to go to your profile and update your signature with your diagnosis and treatment plan. Go to MY STUFF at the top and then profile to update your signature. Be certain to click save or update at the bottom after you do it.
Next you need to start your own topic. You have hijacked Lone's thread. At the top of each forum, there is a NEW TOPIC button. Click on that and start your own topic on your cancer and treament questions. Your cancer is rare so don't be discouraged if you don't get too many responses related to things specfic to that cancer. We are all here to help and encourage you.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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