| | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | That is cool David.
We've got good doctors here (all from UAB CCC) and our oncology nurses are trained there as well. And they do communicate alot - always stepping out to call the other while we wait and usually start the conversation with I talked to ENT or RO or Oral Surgeon, etc. and I always take copies of the notes from each visit to give to the other guy and each time they have already had them. They also talk back to their colleagues at UAB regulaarly and my MO is the Research Director here, not that that has helped with this crazy rare cancer, but he knows what's out there and they guys that are doing it.
I just have to have faith that we made the right decision being treated here. I don't want to beat myself up about it and Dan really really really wanted to stay here in town so here we are. And honestly when we scheduled the initial surgery (parotidectomy and ND) we thought it was benign so I really wasn't thinking ahead to all this kind of stuff.
We'll get to the "bottom" of this new issue tomorrow morning and move on to the next step from there. I'm worried, but I'm human - so what can I say :-).
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Oops - forgot to reply to the rest of yall. My brain is out there today - my little boy is wide open this afternoon and keeps distracting me.
Thanks for the hugs Deb - I am praying for the side effects!!
Eileen - your right had not been to doc much at all. His normal since I have been paying attention is 145/99 and would go up a little from there. His father has heart issues - so PCP put him on BP meds, but last Friday it was 170/100. He said no pain, no stress, etc. but obviously there was something or it wouldn't have been that high. I forgot to have them check it yesterday and asked him to have them check it today when he went for radiation (I'm sure he didn't), but we'll be at the doc tomorrow and the Cancer Center on Friday so I'll see what it says then. I also heard that Cisplatin can lower your BP so I'm a little apprehensive for the PCP to increase his dose.
Yeah Markus - my RO is not a H&N guy. There is not a specialist in Montgomery.
Thanks guys - I really appreciate all of your support!
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Michelle: Go by your pharmacy and pick up a digital bp cuff AND a new digital (ear is preferable)thermometer, if you haven't already....that way you can take 'home' readings and note any obvious changes...best of luck to you two tomorrow.....
Lois
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Great news, Dan is fine regarding the throat issues. ENT scoped it this morning and found no masses, no cysts, no sores, no thrush, etc. It's just red and irritated. He believes it is reflux - the LERD kind and that the radiation has irritated it so now it is bothersome. It can actually cause every symptom Dan is having - who knew?!?! He prescribed Nexium. Evidently you can have reflux and not even know it (silent type) and then when something triggers or irritates it - here you are. We are very very happy, because in the scheme of things this is NOTHING compared to what we were afraid of.
Lois - great idea! I'll do that hopefully this afternoon.
Thanks for all your positive thoughts.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Wow, great news. Hope things continue in a more positive light.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Michelle- Thank god. Good news for once!
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Michelle-
Phew! I got reflux shortly after finishing radiation, I'm on medication for it and it hasn't bothered me since. Funny how when you're dealing with something like cancer, you are glad to hear you have reflux!
Melissa
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
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