#71651 03-19-2008 04:37 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | It's hard to believe that it's almost a year since last year's walk. The dental and hygiene students at NYU and Columbia are running the third annual walk to raise money for OCF on April 19th. As many of you know, I have attended the first 2 walks and I am now in the process of raising money by people sponsoring me for this walk. Last year many members sent me checks and together with my family, friends and colleagues, I was able to raise over $3,600 to help support the OCF and help to assure that it will be around to provide this website for us and future oral cancer patients, their families, friends and caregivers. To read a press release about the event click on this link http://www.oralcancerfoundation.org/news/story.asp?newsId=2107Here is a link where you get information about this year's walk and to watch a video made last year. www.oralcancerwalknyc.org If you watch the whole thing, you can actually see me. I was truly honored that I was asked to say a few words during the openning ceremonies. I am particularly looking forward to this year's walk as Brian will be there and I am excited about the opportunity of actually meeting him. I was also told by Brian that Colleen Zenk Pinter and other As The World Turns actors will be there, too. For those of you who would like to take the opportunity to support your organization by making a donation to OCF by sponsoring me, you can send a check made out to "The Oral Cancer Foundation" to: Dr. Jerold B. Wilck The Oral Cancer Foundation Suite 201 680 Middletown Blvd. Langhorne, PA 19047 No amount is too small...they all add up. Last year one of our members had a great idea of sending me a photo of themselves for me to carry with me on the walk. I received quite a few. It was a great idea and it made the walk even more special. I will be bringing those from last year with me again. Even if you can't send a check, I welcome your photos and they can be sent to the same address. Don't forget to write the names of those in the picture on the back. I would appreciate getting your checks and or photos by April 11th. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 |
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 |
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Jerry,
I'll be there and hopefully my mom will be also. Never thought of holding a picture ....her RO has some fascinating ones!! Also, haven't read fully into everything but would love to try and get sponsors. My neighbors/friends and others have been asking what they can do to help....well, seems like I have a good response now!
Last edited by Donnarose; 03-27-2008 06:33 PM. Reason: spelling
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Joy,
Thanks for your support both from me and OCF. I hope you put a picture in with your check. I was not in the office today, but will check on Monday.
Donna,
It will be great to walk with you and I hope that Rose is up to it. As in the past, I'm hoping that other OCF members will also be able to attend this year.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jerry: I will be sending you a donation next week, I wish it could be more. Im not quite up to the walk this year. Count me in for next year.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Jerry - I am also sending you a donation in the mail... Wish I could be there, we love New York and were thinking about making another trip there soon anyway, and I was hoping we could work this out, but I just started a new job 2 weeks ago so lots going on! (good things, though!)
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Thanks and don't forget to send the pictures.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Jerry....the check's in the mail. C'mon, everybody. Let's help Jerry surpass his donation from the walk last year...over $3,000 as I recall. I wish I lived a little closer and could come and walk too. I'll send another picture for you to carry so I'll feel like I am part of the event. Thanks! XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi all,
Just wanted to publically thank those of you that have sent sponsorship checks.
I still have a way to go to surpass last year's total.
This is a great opportunity to help support the OCF which does so much for all of us.
Thanks.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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