| | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | lolita, I am so sorry about your news. We'll be here to provide what ever support we can through the cyber-world. Do you have a good real life caretaker or team of caretakers? Other than here, where are you finding emotional support for yourself to help you get through this next round?
Lep I completely understand your need to know somehting as soon as possible. You didn't say in your post--did you get an appointment? When is it?
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | You gotta do what's best for you cause you're number one and there's a great distance before you get to number 2 when it comes to your well being. The old greasy wheel theory.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Lolita....so sorry to hear your news; please know we are thinking of you and hoping for the very best outcome; Keep us posted as to your plan of care...
Brenda: Just know that there are many of us here who care about you..Let us know what's going on as soon as you can....
Lois & Buzz in NC
Last edited by emmylou1951; 03-11-2008 05:30 PM.
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | Hi, how to start. Depression sank in about a week ago. Tears and fustration won't stop. When I first asked if the cancer could come back so fast I really was not expecting to hear yes. I went through two bouts of strong antibiotics and steroinds guess what the lump is still there. I went today to see my rad. Dr and the first word out of his mouth was "damn". He said its cancer. Wow. He said its cancer until its proved wrong. I go for a needle biopsy Wednseday the 19th. He said that if it comes back positive the next step is surgery. I won't know the facts until about two weeks to three weeks. He thinks strongly it will come back positive. So here is where I am. I told him I didnot want to do a cat scan because we already know there is something there. I also told him that a MRI will only show more what is there but a biopsy will tell us WHAT is there. Was I wrong? Believe it or not I am not stressing now. I was before I went to see him but now I am finally doing something. Scared yup. I am but not worried. I saw a sign on my way to the Dr's office that simply said "Trust God" and I said "I DO" So soon as I learn more I will post and let you know what is going on. thanks, Brenda
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Lolita,
I am so sorry to read your latest report. I send you my prayers for strength and courage.
Brenda,
I admire your reaction to the Dr. and hope that you have a stress free time as you await the biopsy and results.
Praying for you
PS - i enjoy reading your food posts - I remember sheppard's pie with ground lamb - a very rare treat.
Praying for both of you,
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | Malka, Thanks for your support. I have never tried lamb. I am not sure if I ever even saw it in out grocery stores here in Columbus, Ga. However always trying something new so I will give it a sot if I can find it. Brenda
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Brenda,
Lets all hope for the best. I, like most that didn't have surgery up front, were told that I may have to have after rads so lets hope this is more of a routine clean up procedure.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | You probably should have had the cat scan or MRI so they know the extent of WHAT is there, especially if the doctor wanted one. Fine needle biospys aren't always accurate because they can miss the spot that has cancer. I would have prefered a surgical biopsy if that was available. That way you also would have had the results immediately.
Have they given you a treatment plan if the results come back postive? I found it easier to cope once I knew what was going to happen and had time to digest it. You CAN do this.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Brenda, I'm very sorry the doc thinks it's cancer--I am sure that is not what you wanted to hear (but I'm glad you finally got in to see him). I agree with Eileen in that I think if the doc wanted a CT or MRI it's advisable to go along with that. Aside from what Eileen said about needle biopsies not always being accurate, if it does come back as cancer from the biopsy, they will have to do those other tests before they do surgery anyway. So waiting on those tests until the biopsy comes back may just add a delay in treatment--which, if I were you, I would not want. I'd want them cutting it out ASAP if it turns out to be cancer.
In the meantime, I am glad you are feeling calmer. We will all be here for you no matter what happens here. You're in my prayers.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Brenda: There are many of us who have been through this twice, and we know you have the resolve to get through this, after which you will get on with you life. I'm happy you got to see your doctor quickly so at least you will definitively know. I agree with the others that you should revisit the idea of MRI/CAT scan - all information is welcomed and nothing is better than an informed physician!
We're here for you. One step at a time - you can do this.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | |
| Forums23 Topics18,169 Posts196,929 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
