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#70299 02-22-2008 02:59 AM
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EzJim Offline OP
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I think it would be nice if we set aside a few minutes today and have a group prayer for Brenda. We all loved that lady and I think it would be appropiate for all to say one together for her. I know we can't really do that in the forums, but we could all do it at the same time. Luv Ya All..


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70309 02-22-2008 04:09 AM
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Jim this is a beautiful idea. Since so many of us have been touched by Brenda and not everyone reads the posts promptly, I have an idea.
Perhaps our group prayer could be at the time of her final service. In the meantime, we could individually PM those we know who would want to participate.
Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Malka #70315 02-22-2008 04:35 AM
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Malka,
thats a good idea. How can we find out? Is there anyway in this new age that we could all sign something electronically on here and forward to her? I quess I am just dumbfounded by this. How could it happen so quickly?


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
peace4uall #70317 02-22-2008 04:40 AM
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I would like to participate in this. At whatever time is determined.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Nelie #70319 02-22-2008 04:46 AM
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I'll find out from Sue, I hope to speak to her later today. I think it's a lovely idea.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
Donnarose #70334 02-22-2008 07:59 AM
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That's a lovely idea, Jim. Thank you.
Due to the time differences between us all, maybe those of you in the UK could do it during her UK service, and those of you in the US do it during this service?


Mum - sick as a dog, see her sig.
Dad - diagnosed with throat cancer late 2007.
Brenfransdaughter #70351 02-22-2008 01:32 PM
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Please include us....

Lois & Buzz in NC


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
emmylou1951 #70352 02-22-2008 01:45 PM
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EzJim Offline OP
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This is an open invitation for everyone. I think all we need would be the time of the service and even if we have to, all pray at the same time. Brenda's daughter, just let us know the time of the service. I still find it hard to believe.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70364 02-22-2008 03:05 PM
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I want to participate. I sadly but fondly remember the words of encouragement Brenda sent to me when I was worried about a possible recurrence a couple of months ago, even as she was facing her own problems....


Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
Me2 #70367 02-22-2008 03:26 PM
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I too would Like nothing better then to be her to Honor Brenda


SHar


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
sharlee #70389 02-23-2008 01:17 AM
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Count me in. I am just having a hard time dealing with the quickness with which things went down hill. Since being associated with this site I have witnessed many that have been taken by this cancer but none this sudden. She was one tough lady and this world is missing a good soul.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #70402 02-23-2008 05:37 AM
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David, I echo your thoughts. Count me in too.


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #70404 02-23-2008 05:52 AM
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me too


Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"

Dell1064 #70406 02-23-2008 06:16 AM
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me too


Sophie T.

CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
Sophie H. #70407 02-23-2008 06:28 AM
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Somehow this morning I am able to see Brenda's quick decline as a blessing....after reading of other's struggle (Robin, Rich, John, Wally) with the end stage of H&N Cancer, I realize that it would have been awful for her and awful for her family. Renal failure is a better way to go...hope this doesn't sound crass - I am still devastated by her death, but I am glad that she did not have a prolonged death.

Missing Bren,

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #70412 02-23-2008 06:40 AM
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Hi Deb,

It is a blessing. Mum packed so much into the last few months - she really did "live like she was dying".
When the nurses told me it was renal failure, I knew the end was imminent and I'm glad it was as quick as it was - she had no idea what was going on.



Mum - sick as a dog, see her sig.
Dad - diagnosed with throat cancer late 2007.
debandbill #70413 02-23-2008 06:42 AM
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Think of everything Brenda did over the last few months -- planning and taking her surprise trip to California (what fun she had with that!), traveling to Cyprus, bolstering everyone here with her spirit and courage, and never feeling sorry for herself. What a way to live. My condolences to her family.

-- Leslie

Last edited by Leslie B; 02-23-2008 06:56 AM.

Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
EzJim #70416 02-23-2008 06:53 AM
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Count me in as well.


Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
LarrysDaughter #70421 02-23-2008 08:23 AM
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Absolutely! Brenda was a ray of light. So upbeat and positive and lived he last months on this earth to the fullest. She never let on that she was frightened of the end. She was so brave and so courageous and caring of others and what they were going through. I know this website was a source of comfort to her. Her illness was close to her mind always- as it is for most of us- - but probably more so for her as she was terminally ill with this cancer.

I often wonder how people go on when they've been told that there isn't anything more that can be done. It just seems unfathomable to me. Brenda was a fine example of how to not only approach the end of your life- but you life everyday-- with a positive outlook no matter what and an appreciation of all the details that your life has become - all the wonders and joys of family friends & travel etc. Although we never met in person she revealed much about herself here almost every day since the summer I believe.

I like to think that Brenda is finally at peace without any pain or sorrow-she's busy up in heaven wit her new afterlife- whatever that is is a mystery to use here on earth but I knnow that it is filled with joy and happiness. God knows she's got some good company.

My condolances to her family. I'm sorry that she had to go through this illnesss and that she had to leave you too soon.
May you find comfort in all the memories you have of your times together.


Miss kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
misskate #70422 02-23-2008 08:50 AM
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I pass along my deepest and most sincere sympathies to Brendas family and friends. I have not ever been acquainted with anyone who was as strong as she. Brenda was setting a strong precident for all of us, ilnesss, cancer will not take over my life.
This is the one lesson she taught me.
God Bless,
Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
Dr. Mike #70424 02-23-2008 09:15 AM
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I concur with Deb's statements above, it was a real blessing that she did not have prolonged suffering. My father died 6 weeks after his diagnosis with lung cancer. He had gone to his radiation treatment the day before, spent some time at the hobby shop, and was listening to music and doing some other things at midnight when my wife and I went to bed. The next morning he was gone.

Brenda's spirit lives on with the people here!


Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
sharlee #70425 02-23-2008 09:23 AM
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me too .my prayers are here with her too.thank you for the invitation
with love
lynn


linda anderson
sharlee #70439 02-23-2008 03:30 PM
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Please count me in. I want to be there with you guys
to honor Brenda.


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
peace4uall #70441 02-23-2008 03:37 PM
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Please let me know when. She was such an inspiration to all here. I know I will be reading and re-reading her postings when I am feeling sorry for myself.


Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
girlcat36 #70444 02-23-2008 04:55 PM
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Unless anybody else has also selected Brenda's avatar can we take it out of circulation so that it remains hers only?

opinions?

M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #70453 02-23-2008 07:55 PM
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I can't take it out of the list without it will disappear from all her posts. We'll just have to watch any newbies and if it shows up, ask them to switch theirs.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Brian Hill #70462 02-24-2008 03:25 AM
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I received a PM from Sue about the services here in the US. Sue says they will be next Sat at 2 PM. I'm sorry that I can't be online then or for a couple more days. Friday is the day I have the im-plants and will be in isolation until the following Tuesday. I'm told I will be out of touch with reality for those days too. If I'm far enough out of it, I'll just wave to Brenda. I sure wish I could be online with everyone of you that day. You all have my prayers and especially Sue and her family.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70467 02-24-2008 04:02 AM
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I'm assuming that's 2 p.m. in California, which would be 5 p.m. on the East Coast (and 10 p.m. in the UK). Is that correct?

-- Leslie

Last edited by Leslie B; 02-24-2008 04:04 AM.

Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
Leslie B #70469 02-24-2008 04:37 AM
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Darn, If it's 5 pm east coast time I may not be able to make it here (on the board)either--there's an event at my church I said I'd go to. But one way or the other, I will say a prayer for her at 5 pm on Saturday. And Jim, I'll be thinking of you too.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Nelie #70472 02-24-2008 05:34 AM
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I am now wondering if it is 5 pm east coast time.Sue lives
in California. Just to clear this up.
Thanks anybody that knows for sure.
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
peace4uall #70474 02-24-2008 05:56 AM
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It's 2pm California time, 5pm NY time and 10pm UK time smile


Mum - sick as a dog, see her sig.
Dad - diagnosed with throat cancer late 2007.
Brenfransdaughter #70479 02-24-2008 07:38 AM
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I've been out of pocket this past week and am very sorry to hear about your mother; as you say, she's probably having a brandy and looking forward to Saturday's gathering. Words are simply inadequate...Godspeed.


John - Proud to be here...
Hemiglossectomy 08/02/07, 4 lower molars extracted prior to 6 weeks IMRT 09/10/07-10/19/07, SCC w/met to L neck lymph nodes, rad only, no ND. PEG 10/26/07-02/05/08.
"We're all in the same boat in a stormy sea, therefore we owe one another a terrible loyalty."
JBNich #70485 02-24-2008 08:27 AM
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To Sue and your family,
I am so sorry for your loss. I have been reading posts for a long time and was always inspired by your mother's writings to others. She had insights without preaching. I finally got some courage to put myself out there and post my thoughts & fears. Brenda took the time to respond on 1/29 without talking at all about herself- I've been thinking about her words ever since (and now even more)
Here is what she wrote:

"Don't focus on the 'should have done' stuff.
Start NOW making a list of what you HAVE done--you'll be amazed at how long, full and important it is--working, bringing up kids, being a spouse, looking after a house, giving support and comfort to other people in times of need--includes small child with scraped knee!--to ringing/visiting parents or even grandparents."


I see now that she had a long, full and important list of her own. My thoughts are with you.
Fran

vmasters #70490 02-24-2008 08:52 AM
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THat sure is Brenda. Always looking out for us. She was one of a kind and very caring.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70491 02-24-2008 08:55 AM
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Sue, Iknew what time you meant, but my mind is visiting somewhere it seems. Sorry about not putting the time down the right way.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70886 03-02-2008 04:04 AM
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I am so sorry to hear of Brendas passing. I dont get on here as much as I used to and when I posted the other day I didnt even look at the rest of the board. Brenda was a great lady who helped me through a lot and I will miss her deeply.

May the good Lord be with her family at this time of grieving.

Billy


Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
billy.calcutt #70908 03-02-2008 06:36 PM
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I wore a hot pink shirt SAturday in remembrance. I thin k that was a beautiful idea.


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
misskate #70935 03-03-2008 08:59 AM
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Brenda was a wonderful, kind, courageous woman. I have delayed in posting my condolences to Branda's family, it has been difficult for me to put into words my saddness on her passing. She was truly amazing facing such adversity with wit and dignity. Brenda will be missed by many. Her encouraging words will live on.





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I went to an Odyssey of the Mind Competition on Sat ... And in the one Skit ( put on by kids ) the kid spoke in a british accent... It brought tears to my eyes as it reminded me of Brenda, She was an amazing woman !! and I think of her daily in my work with children with Autsim , her and I spoke about this before I made my decision to go back as this is what we both do .

I will miss her dearly , daily and forever ........


Shar


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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