| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Count me in. I am just having a hard time dealing with the quickness with which things went down hill. Since being associated with this site I have witnessed many that have been taken by this cancer but none this sudden. She was one tough lady and this world is missing a good soul.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | David, I echo your thoughts. Count me in too.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 |
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2007 Posts: 211 |
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Somehow this morning I am able to see Brenda's quick decline as a blessing....after reading of other's struggle (Robin, Rich, John, Wally) with the end stage of H&N Cancer, I realize that it would have been awful for her and awful for her family. Renal failure is a better way to go...hope this doesn't sound crass - I am still devastated by her death, but I am glad that she did not have a prolonged death.
Missing Bren,
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Nov 2007 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2007 Posts: 31 | Hi Deb,
It is a blessing. Mum packed so much into the last few months - she really did "live like she was dying".
When the nurses told me it was renal failure, I knew the end was imminent and I'm glad it was as quick as it was - she had no idea what was going on.
Mum - sick as a dog, see her sig.
Dad - diagnosed with throat cancer late 2007.
| | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Think of everything Brenda did over the last few months -- planning and taking her surprise trip to California (what fun she had with that!), traveling to Cyprus, bolstering everyone here with her spirit and courage, and never feeling sorry for herself. What a way to live. My condolences to her family.
-- Leslie
Last edited by Leslie B; 02-23-2008 06:56 AM.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 |
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Absolutely! Brenda was a ray of light. So upbeat and positive and lived he last months on this earth to the fullest. She never let on that she was frightened of the end. She was so brave and so courageous and caring of others and what they were going through. I know this website was a source of comfort to her. Her illness was close to her mind always- as it is for most of us- - but probably more so for her as she was terminally ill with this cancer.
I often wonder how people go on when they've been told that there isn't anything more that can be done. It just seems unfathomable to me. Brenda was a fine example of how to not only approach the end of your life- but you life everyday-- with a positive outlook no matter what and an appreciation of all the details that your life has become - all the wonders and joys of family friends & travel etc. Although we never met in person she revealed much about herself here almost every day since the summer I believe.
I like to think that Brenda is finally at peace without any pain or sorrow-she's busy up in heaven wit her new afterlife- whatever that is is a mystery to use here on earth but I knnow that it is filled with joy and happiness. God knows she's got some good company.
My condolances to her family. I'm sorry that she had to go through this illnesss and that she had to leave you too soon.
May you find comfort in all the memories you have of your times together.
Miss kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | I pass along my deepest and most sincere sympathies to Brendas family and friends. I have not ever been acquainted with anyone who was as strong as she. Brenda was setting a strong precident for all of us, ilnesss, cancer will not take over my life.
This is the one lesson she taught me.
God Bless,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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