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#66183 12-01-2007 04:50 AM
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Lolita,

I had my treatment for larynx cancer in 2005 (radiation only, at MSKCC in NY) and so far have had good checkups. It was helpful to me to know what others had gone through and what to expect, so I wrote up my story in a journal at http://freds_journey.home.att.net if you are interested.

Good luck with your ongoing checkups - the anxiety level always goes up right before and a good outcome brings satisfying relief - part of life for us now I guess.

I was a smoker for 30 years, but quit 10 years before the cancer showed up. I also had a scotch or two every day and was advised to stop that now too - since alchohol really irritates my throat now, it is not so hard.

Take care,
Fred


SCC of right vocal cord, diagnosed 6/05, 63 gy radiation 8-9/05, so far so good
#66184 12-21-2007 01:46 PM
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Here I sit with a cigarette in hand. It seems to relax me, but at the same time, I can't stand the smell of the smoke. What a dummy huh? I know I have to quit seeing as how I go the 26th Of Dec for a scope and biopsies. It's in my throat now and it's time I wake up to the real joys of life. Lolita, I can feel fot you and hope by now things are a little better for you. I did make 4 months before a reoccurence. I wonder if I had stopped the smokes , how much time it would have taken for the 2nd go round.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#66185 12-22-2007 07:12 AM
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lolita Offline OP
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thanks jim i really need someone one to talk to.wish we both knew how long it will take .mine was a stage1 t1a no nodes no mets. im so scared. i also have m.s. now have bronchitis.the least little pain scares me say my lungs look good so far go back to ent the14th of jan.do you have spasms in your throat it was on my right vocal cord . how about ear aches
wish icould keep this all sraight
wish you the best my pet is in march
ifinished 7 weeks of rad. and weekly chemo in aug
please take care
nice to hear from any one


Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
EzJim #66788 01-04-2008 04:21 AM
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lolita Offline OP
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DEAR JIM do you ever have problems when you first wake up like something is in your throat.i dont know how to describe it is like im snoring i had stage1 t1a vright vocal cord go back to ent the 14 of jan.evrything else has been good so far i also have ear aches that scares me that is how this all started
so confused


Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
lolita #66793 01-04-2008 05:27 AM
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Lolita,

Your posts are very hard to read. It would help us all if you would use capitals at each sentence start and periods at the end. I know that some chat rooms use the format you do, but I can assure you that your posts will be more readily responded to if we can understand them easily.

Don't mean to be well....mean...just want you to get the best response from everyone. Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #66880 01-05-2008 10:22 AM
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lolita Offline OP
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sorry my thoughts are going faster than my typing.will try again thank you.


Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
lolita #66884 01-05-2008 10:41 AM
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Lolita, yes i have the spasms and the terible earache in the right ear this time. I know where you are coming from and have respect for what you say here. Now they say the tongue cancer is back and this time just Rads & Chemo. This has me worried as I lost the abilty to vomit when they wrapped 1/3 of my stomache around my esophagus to stop the reflux that I had continually. I had a virus and it made me know I was still alive when I tried to vomit. LOL My throat at times feels like an elephant fell asleep on it. I guess it's part of what we are all going thru. I wish you well and the best of luck..


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #66896 01-05-2008 02:34 PM
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Jim,

Bill had weekly Cisplatin/Taxol chemo and had almost no nausea. The new drugs given before and after the actual chemo drugs are so good now...really hold down the "ickkies." So, I think you may be OK. Each session, Bill was given 10 bags of IV "stuff" and other than a bad case of hiccups, sailed thru the chemo. They anti-nausea drugs did make him sleepy but that is a good thing when you spend 5-6 hours in a treatment room. Hopefully, you will do as well and not experience too many side affects from your treatments. Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #69964 02-16-2008 01:54 PM
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My husband is a three year survivor of cancer of the larynx. He is totally dependent on the PEG tube. Does anyone have advice about what to be done? All docs say that an operation is not possible. There is not total stricture..but almost. It is a quality of life issue. Help.

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