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| | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Gail, Hi from another upstate NYer.
First of all, the time when I was the MOST scared in my entire cancer battle is right at the beginning when everything was unknown and just the C word still scared me. The fear will get better once you know what you're dealing with. No matter what it is. Trust me on this.
Roswell Park is a CCC and it is by far the closest one in NY to you. There is not another in Upstate. For those of you who may not have your NY geography down, Gail is I'd say about seven hours away, by car, from NYC and Loan-Kettering.
I was treated at an affiliate of Roswell Park here in Ithaca (the RO was from Roswell Park). I think there may be other CCCs closer to you in Pittsburgh or somewhere, you should look at that list, but I also think Roswell Park would do fine. They are a CCC and have a head and neck cancer team that would be treating you and all the additional specialists such as speech pathologist and dental oncologist. I would be making plans NOW to get a second opinion from them.
Nelie
Last edited by Nelie; 02-10-2008 08:00 AM. Reason: typos
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I just looked at that list and there is also a CCC in Cleveland--that might be not much further away than Buffalo for you, if I am thinking of roughly where you are correctly. You're somewhere near Jamestown?
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2007 Posts: 64 | i know it is hard to wait.it seems like forever
i have stage1 t1a on my vocal cord.went thru the radition and chemo.went back to ent in nov everything was good.then went in jan and he saw a nodule on my vocal cord the same one
now moved up pet scan i have it thursday.the people that are on here are great they help any way they can.and beleive ive askde a lot of stupoid ///////////? .TRY NOT TO WORRY iknow that is easier said than done.it will all work out.do you smoke/WE ARE AL LHERE FOR YOU
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
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