| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Very good answers Brian and Brenda. Never mention the words give up Lolita,, they are for losers and we are all winners in these forums. Take the pain meds and live your life like we all are. It's not bad when you keep the positive thoughts going.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I've said many times that this cancer battle is 50% mental for the patient and a lot of that is going on behind the scenes so to speak and drains what little energy we have without us knowing the true culprit. I never thought I was depressed but I bet I was and just didn't know it. I mean how can anyone NOT be depressed dealing with all that's thrown at us !! That's one very important value of this site as it helps all of us affected by this cancer deal with it better.
Last edited by davidcpa; 01-18-2008 01:51 PM.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I think I am depressed too David , but will never admit it. Damned old hard head. LOL I just like to make people feel better and hide my true feelings.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
However you and your body deal with it is good as long as we don't read you jumped off some bridge. Just kidding Jim.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Maybe sky diving without a chute?? LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 1 Member | | Member
Joined: Jan 2008 Posts: 1 | Hi everybody, my name is Don, from Sacramento, California. I'm 48 and i had been smoking cigars for the past 7 years and having about 6-8 Alcoholic drinks a week. I quit 2 weeks ago (01-09-08. I was smoking 1 cigar a day for 5 years. I had smoked 1/2 cigar a day the last 12 months. I have been.I've had occassional bouts with mouth irritation during the years, but after a week my mouth would always feel better.I felt my mouth became irritated at times more often in 2007. I would see a doctor and they would not see any thing. Starting in December '07, I got a small irritation that sometimes felt like a small cut on the tip of my tongue.I did not want to deal with it because it was Christmas. What a JACK ASS!!! I've been. I went to the doctors on 1-13-08, she said it was an ulceration. She made an appointment to see an ENT. The earliest appointment they could give me was 02-12-08. I found out my dentist had a new procedure for oral cancer screening. You swish your mouth with a solution, then they examine the mouth with a special light. I had it done 01-22-08. He said he did not see any cancer,but said that ulceration was probably leukoplakia. I called the ENT office again to see if i could possibly get a sooner appointment. Turns out my HMO has another office 12 miles farther away that had a ENT that could see me today 01-23-08. I could'nt believe it. I went in and had a biopsy on the tip of my tongue that day. I am awaiting the results. I am very scared. 5 years ago, I felt a pea sized lump on one of my testicles. Turned out it was benign. That's the worst thing i had been through until now.
Everyone on this website is amazing. the stories i read, the surgeries,treatment people have had, everybody is so incredible. You are all my heroes. God bless you all. | | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Hi Don,
hopefully you will receive good news.
Re smoking. Please do not pick it up again. Tongues and sharp instruments do not coexist happily!
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Don,
We have a saying around here that it's not cancer until you have been told it's cancer so ease up a tad and lets hope it's just an irritation. Leukoplakia simply means white patch but whatever it turns out to be, now would be a good time to give up the tobacco.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well said there you old fox. LOL Just listen to these people Don > They keep me straight and have helped me a lot...
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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