#67064 01-08-2008 05:59 AM | Joined: May 2006 Posts: 69 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2006 Posts: 69 | I wanted to know has anyone heard or used Poly MVA?
I know someone who is currently on this treatment, and it has slowed the lung cancer movement in his lungs. But he is also on many other drugs.
Thank you,
the world brought me to my knees... Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I have never heard of this and sure will watch this post to learn what it is .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | Most of the web sites selling this make unsubstanciated claims, and are anti-conventional cancer therapies. I wouldn't waste my time or money on this stuff. How you can say this stuff "slowed his lung cancer" when at the same time he is on other drugs is not a logical statement. How could anyone determine this junk was responsible or if it was the other things he was taking?
Last edited by Brian Hill; 01-09-2008 06:07 PM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Now that answer makes sense to me.. Thank you Brian
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2006 Posts: 69 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2006 Posts: 69 | Brain,
Yes he is on chemo, on some drug called Aniston, and he is also using Poly MVA, he is also taking B17, and a lot of other drugs that he is found through alternative doctors.
The thing is the chemo and the Aniston he was on was not slowing the lung cancer down, since he switch to all these things there has been an impact, now he nor his doctors know what is the "Exact" thing that has caused the cancer to slow down .. .. whether its junk or not, thats not for us to decide, something has got his lung cancer to slow down and i just want to know if anyone has some ideas
The person who is on chemo and aniston is also taking part in the following everyday,
Omega 3 pills Grape seed extract Vitamin B B17 - banned in the US Apricot - 25 seeds a day hes also on some Chelation Therapy...
His doctors are not sure what has slowed the lung cancer, chemo and aniston were not having any effect and he didnt have much time, any information on the above would be great,
Thank you,
the world brought me to my knees... Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
| | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | Maybe none of these extra things, perhaps just TIME for the chemo to have an impact. Several of the things on this list are clearly without any merit at all, the others have no peer reviewed benefit published in relationship to cancer. Go to quackwatch.com and do some reading. "Slowing" a cancer is a relative term... It's there, it isn't, it's bigger, it's smaller. It's the same size it was last week, month etc. These are all subjective measurements (except for is an isn't there). Bottom line unless someone has peer reviewed evidence of benefit, a substance or any of these biologicals, is a waste of a patient's money. Too many prey on those in dire straights without much hope at the end of their time here. Sites/people selling much of this are not only not helping, they are a testament to how low people will go to separate others from their money.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: May 2006 Posts: 69 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2006 Posts: 69 | Sure, It's there, it's there, theres nothing you can do, I get it, but "Slowing" is better than nothing... specially for this guy who didnt have much time or hope
see for me, my moms gone, going and will continue going through chemo, but the cancer hasnt stopped, "slowed" or had an impact on the cancer that grows in her lungs .. for me any news of any kind is better than nothing
but obviously I plan to look into everything as much as possible, thanks for the heads up .. i know theres a lot of scams out there ... ..and even if all these drugs/meds/treatments are just buying time for this guy .. then maybe its not to bad .. ? ..
Thanks
the world brought me to my knees... Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | But as Brian succinctly tried to point out they are probably not "buying him time" but simply stealing money from him. Cancer is a multibillion dollar a year industry and the snake oil salesmen are out there in full force stealing your money and giving you false hope. See http://www.quackwatch.org/00AboutQuackwatch/altseek.htmlEven the ACS has an article against it (POLYMVA): http://www.cancer.org/docroot/ETO/content/ETO_5_3X_Poly-MVA.asp?sitearea=ETOShameless bastards. They should all be thrown in jail. Congress and the FDA should be taken to task for not better protecting the public against charlatans like this. If you hear of persons or companies, particularly in herbal or alternative medicines making claims about anything, intended to "modify the structure in the human body" (i.e. act like a prescription drug) TURN THEM IN! http://www.fda.gov/cder/index.html
Last edited by Gary; 01-14-2008 02:55 AM.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Turning them in is the right thing to do,, but just how many politicians will throw away the gifts of money and trips to stop them? It seems they thrive on being dishonest. Maybe not all, but most of them.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: May 2006 Posts: 69 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2006 Posts: 69 |
the world brought me to my knees... Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | The FDA can sieze their products and destroy them, file charges against the company officers (and also throw them in jail), padlock the manufacturer, issue warning letters, fines, etc. Supplements and herbals were excluded, by congress, from FDA scrutiny as long as they don't make claims that they are drugs or can cure or mitigate disease. This extends to claims made by individuals in health food stores. GNC (for example) has received numerous warning letters.
"Honest" and "politician" in the same sentence - whew!
There are some doctors on board with this also. Read carefully the Quackwatch link on alternative cures for cancer.
Disclaimer: We are not against adjunctive treatments per se but when they are used in lieu of legitimate medical care, then you must exercise great caution. There have been more than a few who tried alternative treatments first, only to find out that by the time they figured out it didn't work, their cancer was too advanced to cure by traditional medicine. If you have a bottomless pit of money and wish to persue Poly MVA or any of the myriad of known quack treatments, laetrile, etc., then go for it. Just don't forgo legitimate and proven medical care - even if it isn't the easy way out.
Last edited by Gary; 01-14-2008 10:45 PM.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I had a neighbor would was Dxed with Stage IV SCC last spring. She was the mother of my wife's best friend. I talked to her and her 2 daughters till I was blue in the face. She was told she needed a ND and concurrent chemo/rad by Moffitt. She opted out going to the Bahamas for a miracle cure that cost her over $25,000, not including travel and lodging and avoided the surgery, chemo and rad. I found the quack on the internet (can't remember his name now) and he was barred from practicing in the UK, his homeland, and most other countries including the U.S. I believe he once also practiced in Germany.
She came home to be with her family in October and died in November. What a waste.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Oh my David,
How frustrating and amazingly sad when we both know how much help she would have gotten by following Moffitt's treatment plan. This is not to say that she would not have succumbed at some point to her cancer but I dare say that she would have lived a much longer and relatively better life than she did. What was your wife's BF's position?? Did she disagree with her mothers decision?? Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Deb,
She was the one that got me involved to try and talk some sense into her stubborn Mom. Her sister lived across state and became almost neutral which disturbed both of us. Nobody could guarantee a cure but at least with Moffitt she had a fighting chance.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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