#66173 11-23-2007 04:06 PM | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | does any one know anything about larnyx cancer . they think they got it all with radition and chemo please help no met had i think t1a right vocal cord
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
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#66174 11-26-2007 06:37 AM | Joined: May 2005 Posts: 31 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: May 2005 Posts: 31 | My husband had stage 4 cancer of the larnyx. He is cancer free today. You can see from my signature, he was diagnosed in 2/05. Hope this helps. Linda
Husband diagnosed 2/9/05 SCC Larynx (piriform sinus)Stage IV,T4,N1,MO cisplatin/5FU 3/21-3/25 & 4/11-4/15, began 39 rad 4/21/05 last rad 6/17/05, mrnd 10/7/05
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#66175 11-28-2007 03:36 PM | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | thanks for the help im new to this mine was in the right vocal cord.go back to chemo dr the 6th of dec .one thing icant seem to do is stop smoking it helps to have someone to talk to i m about to go crazy. you wonder if it is lurking somewhere else thank you so much
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
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#66176 11-28-2007 04:03 PM | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2007 Posts: 163 | Lolita I am so torn between wanting to reassure you and wanting to give you hell for still smoking... you are giving yourself every chance to HAVE a re-occurence. I really hope everything is OK at your next Drs appointment, you must let your Doc know you are still smoking maybe he can give you something to help quit.
Please stop Lolita you have chance at life now don`t waste it. Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
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#66177 11-28-2007 04:17 PM | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | thanks marcia for posting back i know i have to stop it is just so hard i want my life back i missed so much i m glad for your husband did he ever smoke
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
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#66178 11-28-2007 04:33 PM | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2007 Posts: 163 | Lolita I have e mailed you... yes he and I both smoked but stopped 15 years ago and I know ..it`s hard. One of my happiest days was when my only child, my daughter, stopped. Seeing what her Dad went through was a BIG incentive.
But you have the best reason in the world to quit...living. Take Care Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
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#66179 11-28-2007 04:41 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | Lolita: My middle son and his wife recently were successful in quitting using the new drug "Chantix" (I'm unsure of the exact spelling.) Coming from someone who knows EXACTLY what you're going through...GOOD LUCK!
Lois in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
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#66180 11-29-2007 05:39 AM | Joined: May 2005 Posts: 31 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: May 2005 Posts: 31 | Yes, my husband smoked. He quit mid-treatment. Thank goodness. I know it was hard, but if he did so can you. His attitude always was, I like to smoke so I will no matter what the docs say. Good Luck. Linda
Husband diagnosed 2/9/05 SCC Larynx (piriform sinus)Stage IV,T4,N1,MO cisplatin/5FU 3/21-3/25 & 4/11-4/15, began 39 rad 4/21/05 last rad 6/17/05, mrnd 10/7/05
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#66181 11-29-2007 08:16 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Lolita, If you want motivation, read 'Rich's plea' in today's active topics! From another point of view--I've been told that stopping at this point would be like 'shutting the stable-door after the horse has bolted' and it's a habit which helps me cope with my prognosis. I know, of course, that I shouldn't and what it does, and my son hates me for it, and I feel such a stupid leper, but I do it. Cancer is hard enough to beat--being beaten up about smoking doesn't help
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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#66182 11-30-2007 07:59 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Lolita,
Well, I thought that I could get away with smoking just one cigarrette a day but as you can see from my signature, that I couldn't. It took making me a total larryngectomee to get me to quit altogether. Trust me. You don't want to go that route.
I quit for 6 months after the first cancer, but hubby still smoked so temptation still in house. I went cold turkey both times and really didn't miss it after two weeks although I can't say I was the most pleasant person. Throw them out, and take a walk around the block when urge hits you. If I quit, anyone can. Good luck.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#66183 12-01-2007 04:50 AM | Joined: Jan 2007 Posts: 2 Member | Member Joined: Jan 2007 Posts: 2 | Lolita, I had my treatment for larynx cancer in 2005 (radiation only, at MSKCC in NY) and so far have had good checkups. It was helpful to me to know what others had gone through and what to expect, so I wrote up my story in a journal at http://freds_journey.home.att.net if you are interested. Good luck with your ongoing checkups - the anxiety level always goes up right before and a good outcome brings satisfying relief - part of life for us now I guess. I was a smoker for 30 years, but quit 10 years before the cancer showed up. I also had a scotch or two every day and was advised to stop that now too - since alchohol really irritates my throat now, it is not so hard. Take care, Fred
SCC of right vocal cord, diagnosed 6/05, 63 gy radiation 8-9/05, so far so good
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#66184 12-21-2007 01:46 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Here I sit with a cigarette in hand. It seems to relax me, but at the same time, I can't stand the smell of the smoke. What a dummy huh? I know I have to quit seeing as how I go the 26th Of Dec for a scope and biopsies. It's in my throat now and it's time I wake up to the real joys of life. Lolita, I can feel fot you and hope by now things are a little better for you. I did make 4 months before a reoccurence. I wonder if I had stopped the smokes , how much time it would have taken for the 2nd go round.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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#66185 12-22-2007 07:12 AM | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | thanks jim i really need someone one to talk to.wish we both knew how long it will take .mine was a stage1 t1a no nodes no mets. im so scared. i also have m.s. now have bronchitis.the least little pain scares me say my lungs look good so far go back to ent the14th of jan.do you have spasms in your throat it was on my right vocal cord . how about ear aches wish icould keep this all sraight wish you the best my pet is in march ifinished 7 weeks of rad. and weekly chemo in aug please take care nice to hear from any one
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | DEAR JIM do you ever have problems when you first wake up like something is in your throat.i dont know how to describe it is like im snoring i had stage1 t1a vright vocal cord go back to ent the 14 of jan.evrything else has been good so far i also have ear aches that scares me that is how this all started so confused
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Lolita,
Your posts are very hard to read. It would help us all if you would use capitals at each sentence start and periods at the end. I know that some chat rooms use the format you do, but I can assure you that your posts will be more readily responded to if we can understand them easily.
Don't mean to be well....mean...just want you to get the best response from everyone. Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | sorry my thoughts are going faster than my typing.will try again thank you.
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Lolita, yes i have the spasms and the terible earache in the right ear this time. I know where you are coming from and have respect for what you say here. Now they say the tongue cancer is back and this time just Rads & Chemo. This has me worried as I lost the abilty to vomit when they wrapped 1/3 of my stomache around my esophagus to stop the reflux that I had continually. I had a virus and it made me know I was still alive when I tried to vomit. LOL My throat at times feels like an elephant fell asleep on it. I guess it's part of what we are all going thru. I wish you well and the best of luck..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Jim,
Bill had weekly Cisplatin/Taxol chemo and had almost no nausea. The new drugs given before and after the actual chemo drugs are so good now...really hold down the "ickkies." So, I think you may be OK. Each session, Bill was given 10 bags of IV "stuff" and other than a bad case of hiccups, sailed thru the chemo. They anti-nausea drugs did make him sleepy but that is a good thing when you spend 5-6 hours in a treatment room. Hopefully, you will do as well and not experience too many side affects from your treatments. Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Feb 2007 Posts: 10 Member | Member Joined: Feb 2007 Posts: 10 | My husband is a three year survivor of cancer of the larynx. He is totally dependent on the PEG tube. Does anyone have advice about what to be done? All docs say that an operation is not possible. There is not total stricture..but almost. It is a quality of life issue. Help. | | |
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