#6545 12-15-2005 03:06 AM | Joined: Dec 2005 Posts: 24 Member | OP Member Joined: Dec 2005 Posts: 24 | Hi, I'm new to the board but I was wondering if telling the story of my cancer of the larynx might help someone. When I found out I searched all over the net and found nothing to help me, the sort of questions that were running through my mind were of what treatment, side effects etc, etc. So I created a webpage at time I was going through my treatment, that in a way helped a great deal. If anyone is interested here is the URL http://www.uksweetheart.co.uk/cancer/ thanks, uksweetheart | | |
#6546 12-15-2005 08:09 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | Thanks very much for sharing your site. I am sure that your experiences will help someone else. The pictures are great, because until one has had radiation, it is not possible to visualize the results. I am very glad you are doing so well, and hope you will continue to visit the OCF. | | |
#6547 12-16-2005 05:11 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Thanks for telling us about your site. The photos of your neck bring back strong memories. It will be a great resource for someone just starting radio and wondering about external effects. It sounds like you are doing very well. Its a pleasure to meet you. Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#6548 12-17-2005 03:25 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Just a sidebar - Some people barely react (mild sunburn effect) to radiation and others have a severe reaction (2nd degree burns). Mine took on the persona of a moderate sunburn, complete with peeling - no big deal. My understanding is that if you have fair skin you will react worse to the radiation. It did kill all of the hair folicles in the radiation field so I no longer have to shave my neck (it also "corrected" my snoring problem permanently - much to my wifes delight).
We all respond differently to treatment.
Nice job on your site uksweetheart and welcome to the forum.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#6549 12-19-2005 08:56 AM | Joined: Dec 2005 Posts: 24 Member | OP Member Joined: Dec 2005 Posts: 24 | Hi Joanna and Tom, you're both welcome, if my site helps at least one person, that will make me so happy. Thank you both for your good wishes and it's a pleasure to meet the both of you...
Hi Gary, thank you, I agree with you we all do respond differently and of course I wouldn't say that everyone will go through the same reactions etc that I went through, I created my site just for general information and what "could" happen maybe I should add a postscript at the bottom claiming this.
uksweetheart | | |
#6550 12-19-2005 03:33 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Back in the old days, when they gave cobalt 60 and it was losing strength (i.e., they had to lengthen the exposure time), people would have horrifc skin damage that NEVER healed - just remained an oozing, weeping, open sore mess. Ionizing radiation has improved that part of it anyway although in some countries, such as India, they still use cobalt 60.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#6551 12-20-2005 02:00 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Wow. Thanks for the perspective Gary. I'm always kind of awestruck when I think about people who went through radiation treatment with cobalt 60. That must have taken *real* fortitude and courage. I know there wasn't much alternative but still. People willing to undergo those treatments set the stage for people like us getting more advanced treatments. It's quite a debt we owe them really. Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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