#62047 11-06-2007 02:31 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thanks everyone. Tomorrow morning we meet with the lymphedema specialist again. I'll let you all know how we make out.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#62048 11-06-2007 02:42 PM | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Donna,
Hang in there..I know you are exhausted but you are a wonderful caregiver and I know your Mom appreciates all you have done for her. Gauging how I feel right now, I know you just want her to be better and for this to be over and have everyone on their way to "normalcy."
Good luck tomorrow...I hope you get some answers on how to slay this most recent dragon! Just felt you needed some kind words of encouragement - you have faced so much.
XXOO Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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#62049 11-06-2007 05:02 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thanks Deb!
The RO told me earlier on the phone that it may take a while longer, she's been through a lot. He also told me to call him if I had any questions after her p.t. visit tomorrow.
I'm feeling stronger again. It's just tough seeing her fall apart and not knowing what to say or do.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#62050 11-07-2007 07:58 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hey Billy,
Well, because the sleeve/stocking didn't work they fitted her for a mask today that she will have to wear at home. She and my father said it reminds them of a ski mask. Is it uncomfortable?
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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