#61636 09-07-2007 12:41 PM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | peace,
Bravo for you! I'll be waiting for the result of your visit.
Love
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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#61637 09-07-2007 03:52 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Glad to hear you have the appointment. I'll be waiting see what you find out.
Good luck.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#61638 09-12-2007 07:58 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Dr. MIke, Jerry, I got news!
I hope you two will catch this sometime today because I am so anxious for your opinions. Well, trying to summarize, you know I first had reconstructive surgery with a bone in my back replacing a section of my jawbone. It did not take and I almost bleed to death 20 days later and so they have taken out the bone and left it as is.
The dentist today after looking at xrays says that where my jaw was cut off, then now it is resorbing?hope my wording is OK. A piece of bone is sticking through and that is what my pain of my cheek is. The back tooth is almost out of the bone and he says needs to be pulled in order to resist infection. He called my ENT(at my urging) and my ENT wants to see me ASAP. It is either that or they brought up the word cancer again. However, my cancerous lesion was on my gum, and even after removing my jawbone, their was no evidence of cancer in the jawbone itself.
Well, sorry for the long story, I have meded myself so much trying to be calm, that I will sit and stare for a bit.
I so hope to talk to you 2 later.
Thanks so much!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61639 09-12-2007 08:26 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Oh sorry, one more important thing! I had radiation for 3 days. I am scared to get teeth pulled. However, they say 3 days is OK-the picture of my tooth on the exray really shows it is out of the bone and I guess too far gone. I want to know if the bone loss will ever stop! He says it is normal and that it usually just stops by itself.
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61640 09-12-2007 08:43 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | peace,
I have been having monthly infusions of Zometa for my jaw-bone loss to slow it down.
So far it seems to be working--no increased swelling in area and only a bit more pain than I already had in lips where the bone is so eroded it's exposed a nerve
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#61641 09-12-2007 01:06 PM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Brenda,
Have you had to have teeth pulled?
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61642 09-12-2007 10:53 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | I already had full dentures--lost all my teeth in late teens after being treated with huge doses of sulphonamides for pneumonia and whooping cough over a 4-month period. They all just crumbled!
So although I don't have the worries of having/not having teeth pulled, when pain and swelling is bad, I never leave the house if I can't get my dentures in!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#61643 09-13-2007 04:37 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Has anyone out there lost any of their jawbones?
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61644 09-13-2007 07:47 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Anyone had hyperbaric oxygen treatments?
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61645 09-13-2007 08:45 AM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Peace --
To find people who have had or needed to know about HBO treatments, do a search of the boards using hyperbaric as your search term. (Link is at the top center of each forum page.) More than 120 posts pop up.
-- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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