#61399 07-26-2007 02:56 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | David, LOL! After I made that post to you I thought "oh yeah, he's an accountant".  It would be nice if there were neat little boxes for everything about this disease but I don't think we're quite there yet. Bill, I hear you about the coffee. It actually took about 10-12 months for coffee to taste good to me again but now coffee and coffee flavored stuff are a happy part of my day again... Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#61400 08-12-2007 05:58 AM | Joined: Aug 2007 Posts: 7 Member | | Member
Joined: Aug 2007 Posts: 7 | My oncologist told me I could resume my previous alcohol consumption if so desired (1 or 2 beers at a time, once or twice per week...never on consecutive days...also the occasional hot weather Margarita). In the 3 months since ending treatment I've had a total of 2 beers and 1 Margarita. Since my sense of taste is still somewhat distorted, they weren't totally enjoyable. Based on that, I have no immediate plans or desire to have more. The Margarita, in particular, tasted odd. Anyone who has had one knows there is both a sweet and sour aspect to the taste sensation. Although taste is gradually returning, my sweetness receptors have been the last to come around. It was very odd to only taste the sour aspect of the drink.
Probably the single biggest reason I'm staying away from the stuff is because I am still battling dry mouth (haven't been on Pilocarpine long enough to know if it will make a difference). Alcohol has a drying effect, so I figure it's the last thing I should be consuming right now.
-Bob
Stage 3 SCC survivor, left tonsil primary (T2 N1 M0)
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#61401 08-12-2007 08:10 AM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | For probably 30 years, Buzz has had ONE Corona almost every single day, that is, until his surgery on 07/19/07. In answer to Buzz' question to the doctor about whether or not he could resume his habit, Dr. Sullivan emphatically stated that Buzz could MAYBE have a beer on special occasions such as his birthday, Christmas, etc., but that he was never to resume his daily habit. The doctor stated that it was HIS belief that alcohol contributes to HNC reoccurrances....
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#61402 08-13-2007 12:58 PM | Joined: Aug 2007 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2007 Posts: 51 | What is HPV? My doctors told me drinking was OK once in a while.
Jim W. DX and treated May 1997 stage 4 tonsil cancer 40 radiation 2X daily at the same time 8 weeks IV chemo cocktail 5 types on 5 days off 2 days refuesed neck resection. 10 years clear now swallow function ceased May 07 after pneumonia.
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#61403 08-13-2007 02:16 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | HPV = human papillomavirus. One strain of this virus can cause cervical cancer; another strain causes genital warts. HPV has been found in some oral cancer tumors (largely those at the base of the tongue). If you do a search on these boards for HPV, you will find many postings. -- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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