#56207 03-14-2005 12:34 PM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | just to up date just been dischared from hospital after having surgery re: traceaoctomy sp got results from ct scan and biopsy etc that the beast is back inside of voice box .last resort is surgery ie full laryngectomy and check glands surgery was ruled out in first instance so i had radical radio therapy.i was in remmission from may 2004 must now put gloves on for the next fight prayers needed please regards maz | | |
#56208 03-14-2005 01:10 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Maz
I was so sorry to read your post, you have our best wishes and prayers .
Stay Brave and fight the bugger Maz.
Let us know how you are doing, we do care .
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#56209 03-14-2005 02:03 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Dear Maz, Tom and I will be saying special prayers for you. We will send all positive thoughts your way as you get back into the ring. You can beat this - - -! There is a customer at our bank who has been around for about 20 years since his laryngectomy.....what a character he is!  Like Marica said - keep us informed along the way. Love Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#56210 03-14-2005 02:31 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dear maz,
Sorry to hear about your reocurrance. I know you can beat this one two. My reocrrance showed up last June and so far the chemo is holding the beast at bay. It CAN be done.
You will have plenty of fight prayers heading your way from Wisconsin.
Best of luck, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#56211 03-14-2005 02:52 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Maz, Plenty of positive thoughts and prayers coming your way! God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#56212 03-14-2005 06:13 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Sorry to hear this news Maz, count on the prayers and take this on, one day at a time.
take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#56213 03-15-2005 07:36 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Maz,
I'm not certain I understand your post. What treatment are they now going to do this time? Are you having surgery or radiation? Is it possible for them to rmeove the tumor with laser surgery? I had a total laryngectomy and outside of having a hole in my neck and not being able to swim or sing, my quality of life is just fine. So if it comes to that, it is not the 'end of the world'.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#56214 03-15-2005 09:24 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hi eileen im having laryngectomy april 6th ive already had 20 sessions radio therapy re cancer right vocal chord it has now returned inside voice box THE BEAST IM READY FOR ACTION REGARDS MAZ | | |
#56215 03-15-2005 11:41 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Maz,
Give 'em hell. I assume you will be getting a TEP. There were able to put mine in at the of the surgery. Sometimes they have to wait to put it in. They were also able to do my surgery without having to take an artery from my arm so healing needed on the arm or leg either. I also had a neck dissection at the same time. I was out of hospital in 5 days with nasal feeding tube which came out about 8 days later. Was then able to talk a little using TEP. Damn thing kept getting clogged and my speech therapist forgot to give me the brush to clear it. If you have any questions, please email me.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#56216 03-15-2005 02:55 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Maz
Your attitude WILL get you through.
I'm so sorry you have to undergo treatment again. I'm thinking of you and sending positive energy all the way to Middlesborough (where my dad was born).
Love to you from Helen
RHTonsil SCC Stage IV tx completed May 03
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#56217 03-16-2005 10:01 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | thanks for ur kind words and prayers everyone eileen i will certainly take u up on ur offer re ??at a later date best regards to all maz | | |
#56218 03-16-2005 11:41 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Just a few thoughts I had after i posted. Make certain that you have a surgeon that has done a zillion of these and is a good plastics man. Also,
I have only seen two of these and am told that they 'don't do that anymore', but I know two people who ae wearing a horrible metal neck collar that apparently also hurts. Make certain that doesn't happen to you. I have nothing around my neck and just glue on an circular adhesive and insert a HME value in the morning. Do ask lots of questions. A speech therapist should have evaluated you and explained what to expect. The one good thing that came from my surgery is that I was able to eat a lot more foods like bread that hadn't been able to eat after radiation.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#56219 03-16-2005 11:43 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hi hellen were in the boro did ur dad come from luve to know.regards from me maz | | |
#56220 03-16-2005 01:02 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hi Maz
The address given by my dad's mother on his birth certificate is 9 Leven St Middlesborough West. Anywhere near you? He was always very proud of his Yorkshire heritage - born 1922.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#56221 03-16-2005 05:50 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maz,
I am truly sorry to hear of your new challenges. I am praying for His strength to carry you when you need it; His wisdom and guidance for your medical team to develop the best possible treatment plan for you; and for God to provide you with comfort and peace.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#56222 03-17-2005 02:55 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hellen ,leven st 10 mins away i remember it well anythingelse ur dad used to talk about its a small world init .iwas born west lane, middlesbrough,1942 there is a special edition of amagazine i buy they print 2 or three a year called REMEMBER WHEN. I LOVE IT catch u again regards maz | | |
#56223 03-17-2005 06:25 AM | Joined: Jan 2005 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 108 | Hello Maz; Just another one of your support group chiming in here. You will make it! Isn't it wonderful how many folks there are here who have jumped out of the jaws of "the beast"..it continues to be an inspiration to me and I hope it will to you as well.
Blessings, Fran
SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05.
Committed to survival with dignity.
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#56224 03-18-2005 02:59 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | Maz,
You know those fighting gloves are the right attitude! And if they start feeling warn out, we're here to send you new ones!! Keep punching away, I'm pulling for you!
Sabrina | | |
#56225 03-18-2005 04:13 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | HI FRAN,thanksfor ur support i realy appreceate sp]it yes i hope to break away from the beastand bounce back my regards maz | | |
#56226 03-19-2005 12:25 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | thanks for ur support sabrina i intend to keep fighting on my best regards to you
maz | | |
#56227 03-20-2005 04:03 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maz,
By the way, let me know if you wear out the gloves and I will send a fresh pair your way!!! I may pack them with lead to give you a bit more power to the punch.
Best wishes,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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