#55858 03-16-2005 06:01 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | OK Shelley, was that Viagra with or without the popsicle stick???  The chocolate still tastes funny but the silly man I am, I have adapted and learned to love the new funny taste. I'm not sure but I think I remember what it used to taste like and I think I used to like it more... Destiny, I lived on Dr. Pepper for many weeks when I couldn't eat. When I went to the ER my blood sugar was like 300 or something outrageous and they just about flipped. I had my last soda around December 2003 and when I tried a Coke the other day, it was awful. I prefer water and have just started drinking it cold again. Just curious, are you using any flouride trays or toothepaste? Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#55859 03-18-2005 12:32 PM | Joined: Jan 2005 Posts: 56 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2005 Posts: 56 | I have a question........my husband Dan just started drinking water again, and that is going pretty well. He is wanting to try to begin eating soft foods and has tried pudding and jello......both taste awful. Any suggestions? I see where some of you have said that salty first, then sweet.......but I'm not sure if you meant that is the flavor sensation returning OR what was tasting tolerable. Please give me some suggestions......b/c I'm trying desperately to find something that may taste reasonably good to him, while he is still wiling to "try" and eat. Thanks for any info......
Michelle G.
PS: I thought about popsicles, but neither Dan nor I would know what to do with all the leftover sticks! :p
Michelle
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#55860 03-18-2005 12:50 PM | Joined: Nov 2004 Posts: 90 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2004 Posts: 90 | Hi Ed!
Sorry to respond so late...the Viagra was WITHOUT the popsickle stick...LOL....
Have a great weekend,
Shelley
Caregiver to husband, Ron. Throat cancer, Stage II. No Chemo or Surgery. Completed 35 Radiation Treatments in November 2004.
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#55861 03-18-2005 03:01 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Michelle,
yes, patience! It takes time for the taste buds to come back and they come back gradually over a period of time. Also, experimentation. Keep trying different foods and flavors. My theory is that since too much or too little salt is important to the body is why that taste sensation comes back earlier. Many grocery store delis and soup counters will allow you to try small samples.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#55862 04-12-2005 09:28 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Oh my God--no one warned me how funny this topic was--I spit green tea all over the keyboard! Popsicle sticks. Now I've heard everything.
I came here with a question--when you lose your sense of taste, does your sense of smell go too?
My rad. oncologist told me I could expect my sense of taste to never be the same again, if it comes back at all (I think he's got a scorched earth policy planned for my tongue) and I *think* I have reached the point where I can deal with that (just so long as the cancer never comes back either). I'm eating all sorts of stuff I love to give the taste buds a good send-off.
But I would miss my sense of smell much more and if it might go permanently I just want to know so I can try to get some lilacs in the house in the next week or so.......
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#55863 04-12-2005 11:43 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Nelie,
It's been a long time, so my memory may not be accurate on this, but I don't think I lost my sense of smell. During radiation, I seem to recall smelling food aromas that I knew should be creating hunger pangs, but eating was such an abysmal (and painful) chore at that point that I had no desire to eat.
I'm really surprised that your radiation oncologist said your taste buds would never be the same again. For me it took quite a few months, but mine eventually got back to what I would call normal -- in other words, they seem to have the same likes and dislikes as before cancer. (By the way, the day before I had my surgery, I decided to give my mouth a "sendoff" by going to the local deli and getting a tongue sandwich -- PATHETIC?!)
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#55864 04-12-2005 12:38 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Nelie,
I'm surprised also that your doctor told you that, especially with you having IMRT, which is easier then field radiation. I had field radiation and my taste is back to normal. The texture of some foods is off but the taste is good. It took awhile but did happen.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#55865 04-12-2005 02:45 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Oh Cathy, a tongue sandwich! that cracks me up
Maybe I will have to ask him about why he said that about losing much of my sense of taste again. If I can ever get a hold of him. I am NOT happy with how we are communicating right now but this is probably what I should have expected when I decided to stay here at this very new extension of Roswell Park instead of going elsewhere.
It's good news about the sense of smell though...
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#55866 04-12-2005 03:06 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Nelie, my sense of smell is never affected and I have never been told by my doctors that in my type of cancer, treatment would affect sense of smell. As for taste buds, I have never lost all of them but after treatment,they are never 100% back to normal in my case, unlike some of the posters who are so lucky to have all the tastes back. I still miss my sweet taste and very often I just imagine how sweet the food tastes. And the smell of the food helps me imagine too.It is good for me since I am diabetic and should not too much sweet food.
Karen.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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