Previous Thread
Next Thread
Print Thread
#55762 11-09-2004 03:47 AM
Joined: Jul 2004
Posts: 12
Terry K Offline OP
Member
OP Offline
Member

Joined: Jul 2004
Posts: 12
I completed 7 weeks of radiation and 3 chemo treatments 2 weeks ago for SQC at base of my tongue T4, and am curious how long to expect before I can get the Peg tube removed for feeding. Currently my throat is still sore and it is difficult to swallow, coughing up the sticky stuff and some blood. I have been able to set a few spoon fulls of soup down but even that is difficult. There is virtually no taste to food. Thanks for your comments.


Terry
#55763 11-09-2004 04:50 AM
Joined: Feb 2004
Posts: 261
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Feb 2004
Posts: 261
I wanted that tube out as soon as possible after rad finished! I should have used it more, but I forced myself to keep eating orally throughout & had tube removed a month after treatment ended. Everyone is different. I had motivation to go swimming with my kids. The hole sealed up real fast & I was in the pool a week or so later! Try onions or oniony foods. Very flavorful! Just keep trying & taste will come around. At 3 months out I went to a Mariners game & ate a whole order of garlic fries with lots of ketchup! YUM, YUM! They created a force field to be reckoned with but damn they tasted good.


dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
#55764 11-09-2004 05:42 AM
Joined: Jul 2003
Posts: 382
Likes: 3
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jul 2003
Posts: 382
Likes: 3
Terry-
Depends on how much weight you've lost and how much you are putting in by mouth. I had lost 45 pounds during teatment and they wanted me to gain some weight back before they would remove it. I was pretty motivated since I needed to get back to work and dealing with mid-day tube feedings in the office was more than I could handle! Had the tube out 1 1/2 months after I finished chemo. Taking it out was just a quick pull, no pain and healed up quickly. - Kris


SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
#55765 11-09-2004 06:18 AM
Joined: Sep 2002
Posts: 642
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2002
Posts: 642
Terry,
I kept my PEG for 10 months after treatment ended. I still needed it for nutrition and did not find it that big of a hassle. At work I hung the bag on a nail on the wall and kept working, and I used to play golf with it under my shirt.

My advice is to keep the PEG until you can get enough nutrition without it. There is no reason to rush.

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
#55766 11-09-2004 07:41 AM
Joined: Feb 2004
Posts: 372
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Feb 2004
Posts: 372
Hey Terry,
My husband had the tube put in at the beginning of chemo/rad, began using it after 3 weeks of treatment. He had it in a total of about 5 months. He lost about 50 lbs. since diagnosis, so the PEG was a must. He went 6 weeks without talking at all and about 4 months with nutrition by PEG only.
God bless, Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
#55767 11-09-2004 10:15 AM
Joined: Mar 2004
Posts: 417
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Mar 2004
Posts: 417
Terry:
Radiation does a lot of damage to healthy tissue and in such a delicate and sensitive area as the mouth and throat, it is devestating. Do not try to rush eating. Do you cough or have a choking sensation when you drink or try to swallow a thin liquid?
I was recently placed back on my PEG full time due to aspiration of liquids.
Darrell


Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5