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#55420 08-17-2004 07:01 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Len,
The most spicy foods were very uncomfortable for me until about 8 months post treatment. The fool I am, though, I kept trying. I would have a froggy voice for a day or so and pain over night. Now, I can eat the spiciest and have no ill effects. I stay away from habenero only.
I have not been able to juice much since radiation because it burns my throat. I used to juice almost daily and have not been able to tolerate it. I made some cucumber/onion/vinegar stuff the other day and the vinegar fried my throat for 3 days.
If you look in your mouth do you see any brown or yellowish stuff on your tongue or throat? I battled thrush for a long time and I always could see it when my tongue and throat hurt the worst. I could not eat much of anything when it was hurting.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#55421 08-17-2004 11:23 AM | Joined: Apr 2004 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 156 | How about trying something like Orange Juice for the first time after treatment?! Now I understand why babies make those faces with new foods. My mouth puckered like I was eating a lemon. We'll wait a while before retrying that one.....
Though radiation to my neck stopped in May, I try a sip of alcohol now and then. It tastes and feels like that 200% firewater from Mexico - you know, the stuff that smells like nail polish remover.
And I can't count the number of times I've dribbled water down the front of me. Anyone else have this problem, or am I just revisting childhood in additional ways?
Sabrina | | |
#55422 08-17-2004 03:55 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Erik, it may help your morning mouth to use one of those nose things. I must have been a mouth breather because I remember waking up as you describe. Before I learned to sleep with my mouth closed, I used those things, the name of which I cannot remember, and they helped quite a bit to let me get more air in through my nose. You know, those things sold for snorers. A cheap fix for a big problem. | | |
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