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#55015 06-20-2004 04:50 AM
Joined: May 2004
Posts: 34
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Contributing Member (25+ posts)

Joined: May 2004
Posts: 34
Dani - did you ever get a response about your mom's swelling? My sister is still going through her radiation treatment and her face is swollen - in fact she told me she thinks she looks like L'il Lulu - remember that cartoon? The rad techs told her she will be surprised at how quickly it goes down after treatment stops but for the time being it is annoying to say the least.


Caregiver/twin sister to Cathy diagnosed with tongue cancer Feb. 2004/partial glossectomy and neck dissection Mar 2004/recurrence may 2004
#55016 06-21-2004 01:52 PM
Joined: Jul 2003
Posts: 235
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Joined: Jul 2003
Posts: 235
Dani,
I noticed that my dad's face swelled up after his treatment last week. I was told that it probably had something to do with the steroids that they've given him as part of his treatment. I don't know if your mom is getting steroids, but perhaps that may be a culprit. Sorry that she's experiencing this. Best wishes.
D


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
#55017 06-21-2004 03:30 PM
Joined: Oct 2016
Posts: 284
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Her swelling went down quite a bit but now there appears to be an area in her mouth where the skin graph was that has some bone exposed this is causing her severe pain and probably has to do with the swelling. Her dentist gave her antibiotics to bring the swelling down because when he realized the bone was exposed it seems to be somewhat infected. She just had a PET/CT scan on friday so we will get the results on Wednesday. I'm a little overwhelmed at this point and I'm praying that everything is ok. This is the most horrible and frightening diesese. Its like a being on the road with a bunch of roadblocks and it seems like once we get through one another pops up. I'm praying for good news with the scan. I will keep you all posted. Thank you for you responses.

Dani


Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
#55018 06-23-2004 01:01 AM
Joined: Apr 2004
Posts: 146
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Joined: Apr 2004
Posts: 146
Dani,

I'm praying for good results today from your mom's PET/CT scans. Keep us posted. I hope your mom has some good pain drugs for the pain she's experiencing in her mouth right now. The swelling should subside with time. Your mom is lucky to have you by her side during this difficult process. Hang tough.

Hugs, Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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