#54969 05-26-2004 06:51 AM | Joined: Feb 2004 Posts: 40 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 40 | Of course on this big milestone day I
Dig.7/03 3cm+ lymph nodes & base of tongue tumor. Radical neck dissection w/removal of one neck muscle, laser removal of tumor. 47 sessions of radiation, 2 doses of Cisplatin & PEG tube 40yrs old non-smoker/drinker
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#54970 05-26-2004 07:19 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Congratulations Minky on a successful first year!! Enjoy the coasters with all you've got!! Those hills, dips and loops probably don't seem as impressive now considering all you've been through. Keep up the good work... 
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#54971 05-26-2004 07:51 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Ha Ha - they cancelled my third cisplatin -thank you very much! I don't think I would lived through a third one - didn't need it anyway, the tumor was totally gone after the third week in radiation.
I think you need a 12 step program for PEG tube dependency but then again maybe it's like John Malcovichs portal -just watch out for that New Jersey Turnpike!!!
Congratulations on your first year. I'm only 3 months ahead of you and it does seem a little abstract at times. I'm glad that you're still sharing with us.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#54972 05-26-2004 08:21 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Minky
Great news.. enjoy your roller coaster rides.. you need a week in disney world..
Take Care
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#54973 05-26-2004 08:30 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Way to go, Minky, one year out is a great milestone! I am looking forward to a clean milestone for Dan at one year!
God bless you and your family!
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#54974 05-26-2004 08:38 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Congrats Minky,
We love to hear the good news - it warms our hearts.
Glad you are doing great.
Dinah | | |
#54975 05-26-2004 09:17 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Minky,
Great news at year one!! That's about the time I started going on the rides again, too! At 21 months past treatment I'm still riding them and it hasn't added anymore pain to my neck than the usual stiffness I put up with. Go girl!!!! And the peg is an easy out. Just one tug and you hardly feel it's gone. - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#54976 05-26-2004 10:59 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Minky,
Congratulations -- that's terrific news!
One of the things I've enjoyed about those kinds of followup visits is the smiles on the doctors' faces when they know they only have good news to tell you.
Stay healthy!
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#54977 05-26-2004 01:24 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Minky,
And a whoopy tie yie yay! I am so excited at the big milestone for you. I am so looking forward to experiencing it firsthand, too. I didn't have the neck dissection but just more cooking on the neck. I was riding the slick carts yesterday and this 300 pound gorilla lady plowed into me so hard it knocked my glasses about 5 feet in the air. I am sore today but she has no idea what I have already endured!
May your path remain steady.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#54978 05-26-2004 03:16 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Excuse me but besides the great survival story, I believe the words are: Gotta ride down baby into this tunnel of love.... Happy for you Minky 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#54979 05-27-2004 03:10 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Congratulations Minky!!!
This a huge milestone. Go out and have a nice big steak for me.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#54980 05-27-2004 03:22 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Congratulations Minky,
Enjoy the rollercoaster ride, The faster the better!!!
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#54981 05-27-2004 03:57 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Gosh, I hope I am posting where I should be. Anyway, I have a question, I had surgery two years ago (tongue and neck dissection) and about a month or so ago, developed a small sore over my trach scar. The surgeon immediately went in, cut on it and had it tested and it came back negative for c. Gave me antibiotics, went back to him yesterday cuz it just won't heal, I am going in for deeper surgery on June 11th. He thinks (and I am hoping) it might be a leftover stitch from trachetomy causing chronic infection. Anybody else experience anything like this? Thanks! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#54982 05-27-2004 08:54 AM | Joined: Feb 2004 Posts: 40 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 40 | Thanks every1! I'm seriously looking forward 2 having some FUN. When we left the house for surgery a yr ago I told my husband not to worry cos next summer we'll be at a park slurping on some slushies & think wow what a weird last year we had & high-five it baby. I kept meditating on that thought when things got rough during treatment. Keep postive guys!
Carol L~I didn't have stiches, they just let the hole heal from the inside out so I don't know. Good luck to you, I hope all goes well.
Dig.7/03 3cm+ lymph nodes & base of tongue tumor. Radical neck dissection w/removal of one neck muscle, laser removal of tumor. 47 sessions of radiation, 2 doses of Cisplatin & PEG tube 40yrs old non-smoker/drinker
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#54983 05-27-2004 09:29 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Minky,
I'm so happy for you! Since the first day that you posted I knew you had this thing beat because of your extremely positive attitude! Congratulations!
Ed,
I can't picture you on a slick cart track. Now I'm really curious about what you look like? The only time I ever ride those things is when we go miniature golfing after a few cocktails and I've crashed pretty bad too. My neck was pretty sore for a couple days....
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#54984 05-27-2004 10:35 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thanks Minky and Congrats on your milestone! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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