#54762 05-06-2004 04:43 PM | Joined: Dec 2003 Posts: 47 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Dec 2003 Posts: 47 | Just a note Erik.... I tried someones suggestion about Lavender oil to help sleep... I happened to have a bottle because it was suppose to help scars disappear... and I had a mole removed on my face. Well it really didn't do much for the scars but it really puts me to sleep! Even my 11 year old son zonks in less than 10 minutes! It doen't take much and too much doesn't smell nice but a little reminds my of that scene in The Wizard of OZ ."Poppies...that will make them sleep...poppies...sleep...sleep.....Erik!"
Good luck
Karen
Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004
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#54763 05-06-2004 11:36 PM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Hey, Karen, I`m a very firm believer in lavender oil, if it could knock Frank out, it`s pretty potent. I just put a couple drops on a tissue, and it`s also good for anxiety and panic attacks. I also used lavender with pure aloe vera juice on Frank`s neck after his first round of radiation. Believe me, it`s one essential oil, I`m never without, and essential oil of geranium will stop a cold sore in it`s tracks........Hugs, Dee | | |
#54764 05-07-2004 05:39 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Oil? I just take about three steps out of the kitchen door and pick some. It's right there next to the marjoram, oregano, parsley, fennel, rosemary and thyme...why that would be across the walkway from the curry, dill, sage, lemon basil, gotu kola and hyacinth bean. I may have missed some.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#54765 05-07-2004 07:09 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Erik,
Try garling with baking soda. It is temporary at best but it really thins out the thick stuff.
You are going to get through this man. The cool thing is after it is done, every week that goes by you wont beleive how much better you feel and how shitty you felt. I am about 2.5 months post and I feel a little better every day. I am eating,tasting but not really enjoying. Everything still tastes a little funny.
Tonsil T1N2A 1 Node Diagnosed 9/3/03.
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#54766 05-07-2004 08:24 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Erik,
The baking soda does help. It took about 6-8 weeks after radiation for mine to thin out. I thought I might go insane, but I didn't. It is frustrating as it can be. My speech pathologist said that everyone complains about it. I said duh, why don't they come up with something that fixes the problem then. or better yet find a cure for this awful disease. I tend of oversimplify.
Good luck
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#54767 05-08-2004 04:36 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hey would you all mind putting the herbal information in the "Adjunctive Therapy" section? I want to be able to find it later! 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#54768 05-08-2004 06:14 AM | Joined: Apr 2004 Posts: 143 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 143 | Hey, mark, I agree, we need to get this stuff on adjunctive therapy............i`m a little uncomforable with aromatherapy and such, unless it`s adjunctive........cause, I for one, being an RN need to be in the middle ground.......I know adjunctive stuff works, but I`m n way avocating it for western medicine.Hugs, Dee | | |
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