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#54533 03-18-2004 10:44 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Gary, That was the word I was looking for "chug". She is eagerly awaiting the point where she can chug again and wondered if she would ever be able to. By the way she feels really good today. She says she has more energy than shes had in weeks! Danielle 
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#54534 03-18-2004 05:15 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Danielle,
Tell your mom that I still have sores on my tongue and I am 8 months out of radiation. It takes a long time to heal and some of the sores I have now came out months after radiation. I believe that once we start eating "real" food again that we damage the now very delicate inside of our mouth and our tongues, causing the sores/ulcers. At one time the one on the tip of my tongue was the size of a quarter, even a bit bigger.
Also, I didn't have any problems drinking water, etc. It was carbonated drinks that I craved and was very excited the day I could drink a Pepsi and it didn't burn my mouth!
I'm glad she's feeling better..........it will continue to improve now.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#54535 03-19-2004 07:27 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Danielle-- now that she's a few weeks out from radiation, she should start that slow but wonderful upward turn (sounds like she already has)... I know I did, though I took a nice dip at one point afterward before coming back up... Nuitrition is very important -- some of my big problems came from being dehydrated and not getting enough good calories in me...
I'm now two months out from IMRT and I feel tons better... I'm even working about 30-35 hours a week and eating a diet of "real" food most meals (even taco salad the other night, without many chips however)... Like Minnie, I crave my carbonated beverages, but they still burn too much... That's probably a blessing as I drank way too many of them before and wonder if all the sugar and poor nuitrition contributed to my condition in the first place -- that's for another thread, though...
Keep up the good work as her caregiver... You and others like you (my wonderful wife!!) are true gems for walking through this with us...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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