#54404 02-20-2004 01:27 AM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Dan, I wonder what triggers your thought of stepping away from this board. You have always been a very supportive and encouraging member here and many have been helped by your insightful advice. Is it because you feel discouraged after hearing the scan report? Or is it because you feel too tired to share with others? I hope this decision is not a sign of emotional turbulence or intentional withdrawal. It is good that you will resume your work next Monday but before you go back to your work place, I think another type of anxiety appears (I hope I'm wrong). My job as a senior administrator in a secondary school is very demanding and yet squeezing some time every day surfing on the OCF releases some of my tension and adds some color to my life too. I don't mean to interfere with your choice as no one thinks alike. I just want you to know that your contribution has been very valuable and staying away from this big family may not be a wise decision.
Karen stage 4 tonsil cancer diagnosed in 9/01.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#54405 02-20-2004 02:59 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Hey, folks, is it possible that even though a few days ago Dan said he felt calm and was ready to accept whatever news his scans revealed that he was actually NOT ready to get results that don't give him the definitive answers he needed/expected? Maybe that is such a let down after all the tension that all he CAN do is step away and figure out how he feels about not really KNOWING. I went with my sister to the dr. this week to learn of her yearly CT results after undergoing treatment for lymphoma last year. Everything on the report looked great except for some line about "focal hypodensity of the left lobe of liver" and that it needed to be watched. Even though the report said it was probably a couple of things (probably not mets), she left there feeling numb. I wanted to cheer for her because it really was a good report overall, but that one line took away what would have been a happy occasion. She went home (she lives alone) and didn't answer her phone for two days. I had to let her have her space. She has to come to terms with it all on her own, and so does Dan. Dan, whatever you do, we are behind your decision 100% because only you know what is best for you. Nobody means to be pushy or too assumptive; we all care about you and hope you are OK. You've gotta admit that some of these folks are pretty darned endearing  Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#54406 02-20-2004 03:23 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Dear Daniel,
I have 7 children, 2 step children, 3 grandchildren, and a second family consisting of approx. 300 other families (my gyms). Two kids in college, two needing braces, two in private school, one wanting horse back riding lessons, husband wanting to buy a $1000 treadmill, and I need a new dryer...............my point being that I am broke over all of this, not a penny to spare. A trip to Wisconsin is just not doable. Please stay on the boards and let US help YOU.
Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#54407 02-20-2004 05:02 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Christine...Just a passing comment about the liver hypolucency. These are normally a cyst or a hemangioma, both benign things and I had my heart sink too when they showed up on my scans by accident at the bottom of a lung CT, where the top lobe of my liver could be seen. We chose to do nothing, and wait 4 months to have the spo
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#54408 02-20-2004 05:29 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Thanks, Brian!! I'll pass it on! Woooooooooooo Hoooooooooooooooooo! And Dan, when you return here and see all this love, I know it will make you feel better!  Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#54409 02-20-2004 08:59 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 |  I want to thank each and every OCF member who wrote reguarding my scan results. I only wish I could meet each and every one of you for a group hug. That would be so cool!!! Please don't worry about me, I am feeling much better thanks to all the good advice. I love each and every one of you. Your Friend, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#54410 02-22-2004 02:16 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Dan, you're a great guy. Your support to me and everyone else on this board has been incredible. My thoughts and prayers are with you and your family. Stay strong. If there's anything I can do to help you, just email me.
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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