#54328 02-10-2004 08:20 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hello All,
I had my 10 month post surgery (7 months post radiation) check up today with my oncologist and he said EVERYTHING LOOKS FANTASTIC!! Of course I spent a day being anxious about it and hated all the poking and prodding in my mouth, but the feeling of hearing those words is priceless. I gained 7 pounds in the past 6 weeks and he doesn't need to see me for three months. I am two pounds shy of my pre-diagnosis weight! Awesome day, I feel like Carol Brady I'm gushing about it so much. Take care everyone!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#54329 02-10-2004 09:24 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 |
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#54330 02-10-2004 02:01 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Minnie, great the checkup was good. Each follow up that comes back OK is another step toward getting back to "new normal".
Finally after the last scan came back ok I feel like I can proceed with life and get on with it.
Still havent' gained all that much weight though, not sure I want to at this point.
Congrats
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#54331 02-11-2004 06:09 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Thanks Mark and Bob,
I can't wait until I can say it's been YEARS with clean check ups. This check up meant alot to me, there have been lots of little things crop up in my mouth that have scared me and this clean check up lets me know that radiation does in fact do a NUMBER on your mouth. I turned a corner with this check up, I feel a little more "safe". Not that I still won't check my mouth a hundred times a day, but each little thing won't strike such fear in me.
Here's to many, many more good check ups for all of us!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#54332 02-11-2004 07:18 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Wonderful news Minnie... I think these kind of reports lift all of our spirits...
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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