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#53931 07-13-2007 10:44 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Kim, also FYI, the FDA has nothing to do with the actual research, it is only the approver of a drug or treatment that has already gone through research and clinical trials. (See this link that explains clinical trials http://www.oralcancerfoundation.org/facts/clinical_trials.htm) I am in a clinical trial at MD Anderson, and I can bet that if some of the doctors there or at other cancer research centers thought that this treatment had efficacy, they would be studying it (and perhaps are already doing research in related areas)
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#53932 07-13-2007 12:01 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Please note that Introgen Therapeutics is a financial supporter of OCF, and I am the one that approached them with the idea for their science to be used in the oral environment a couple of years ago... something that they never had considered. That and an introduction to several dental companies yeilded them an over 20 million dollar investment from Colgate in Introgen's clinical trial effort.
Sometimes seeing the postential of something comes from the most unsuspecting sources.... a high school graduate that likes to read cancer research papers who does not have a string of fancy letters after his name.
Kim - Mexico is full of bogus clinics offering cancer cures that do not work to the unsuspecting.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#53933 07-13-2007 01:00 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | You rule, Brian!
-- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#53934 07-16-2007 12:52 AM | Joined: Jun 2007 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 33 | thank you leslie and brian and yes brian you do rule i just read your post on livestrong and you are a great person for starting this site.
KIM P
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