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#52831 04-13-2004 02:17 PM
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annabel Offline OP
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Hello,
Cigna Dental insurence only covers so many visits to the dentist under normal conditions. With the cancer and up coming radiation , my mom will be seeing her dentist more often. How do I get around this. Can her doctor refer the nessasary procedures to the dentist so the insurence will cover more? I have a horrible feeling that the dental side of all this is going to be more than we can afford.
Also should her primary doctor refer her to a dentist who specializes in cancer paitents. I am having a hell of a time finding one.

annabel

#52832 04-13-2004 03:55 PM
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Annabel,

Do you have a medical TEAM or are you the coordinator of everything? In my case, there was an oral surgeon, an otolaryngologist, a radiation oncologist, a medical oncologist, a social worker and a nutritionist on my team. A tumor board reviewed the plan of attach and approved it before anything happened. I found out dental insurance pays to pull out my teeth but not to put anything back in, even though I know of others on a different BC/BS plan that paid for implants as a medical necessity. It is tough but it sounds like you are really getting a rough deal. Is there a social worker in the oncology department that can help guide you to the resources you need?

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#52833 04-13-2004 05:45 PM
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I had to fight to get my dental work done before radiation but I won the battle. My medical insurance company picked up the tab for some root canals I had done before I started radiation, it didn't even go through the dental insurance. Now granted, I had to FIGHT like crazy but it was worth it. My implants and other dental work is also being paid for by my medical insurance. Place one call each and every day, make sure they know who you are.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#52834 04-14-2004 01:44 AM
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Annabel:
Medical necessity... A key term... Most Major medical insurance companies will pay for your dental work because they are forced to do so.. Like Minniea says, you have to fight like crazy . But you are fighting to keep your head above water financially as well as survive cancer...


Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
#52835 04-14-2004 06:10 AM
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You can't get around all of it! I have been with my same dentist for so long that he is absorbing the cost of the third cleaning (they will only pay for 2 a year -period). They wouldn't pay for the dental trays either. I told my dentist that I would have the doctor to write a letter that they were a "medical necessity" and that may have worked, but it fell through the cracks. They will only pay for x-rays once a year also. I had a baseline set taken and then I had a repeat set taken when I was finished with treatment because my teeth were so beat up from xerostomia, etc. I had to pay for that. I can only imagine the nightmares of getting them to pay for implants.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#52836 04-14-2004 04:16 PM
Joined: Mar 2004
Posts: 38
annabel Offline OP
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Very insightfull information. No I don't really have a team. There was one for the surgery and reconstruction but thats all. There is a case worker at Loma Linda but I thought she only worked with HMO insurence. I thought her Cigna Dental insurence was seperate from Blue Cross, I will be checking that one out asap. Dental issues were the last thing mentioned and only casually as in "Oh, bye the way she should she a dentist before radiation....you make the appt." Anyways thanks for the guidence...Annabel

#52837 04-14-2004 05:48 PM
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I belong to an HMO (Kaiser Permanente) and they paid all of the expenses from UCSF including the dental oncologist consult and panorex x-rays. They also paid for a CT at UCSF and 100% of my followup visits until UCSF determines I don't need to be seen by them. The bill the HMO paid for my IMRT alone was over $300,000.00. There wasn't even a copay for ANY of it. My medical covered the dental oncology exam because it was a medical necessity. The radiation oncologist would not start therapy until the dental consult, they also insisted on an MRI, a PET scan and a Hep C test. The HMO moved me to the "head of the class" and I received the scans and tests in a matter of days. I also had a nutritionist at UCSF as well as one at Kaiser.

I determined later on that they weren't going to touch my teeth. The 10% chance of ORN wasn't worth it, not to mention that some of that percentage get ORN WITH their teeth pulled. They started out wanting to pull all of them, then changed it to just the ones in the radiation field. I am glad I kept my teeth. It takes a lot of discipline to stay on top of the maintenance required though. I use a WaterPik after every meal or snack, floss at least once a day, dental trays with flouride several times a week, 3 cleanings a year, etc.

My dentists son, who recently graduated from UCLA school of dentistry, has received some training as a standard part of his curriculum in treatment of cancer patients. He had some really great up to date materials and that helped also to make the decision to keep the teeth.

Maybe the dental oncologist at LLUMC can give you a referal.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#52838 09-10-2005 05:17 AM
Joined: May 2005
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Gary,
Could he give me a referral in NJ. I have also have tongue ca, resection, nodes removed that were positive and radiation. I'm a 7 year survivor but now my gums are breaking down. I have had 8 caps w/ root canals so far. I'm wondering about pulling them (I'm 40 years old and this terrifys me)
I'd appreciate any advice you can give. Thanks Maria


Maria 33 when diagnosed with SCC, partial glossectomy with skin graph from thigh,rt side nodes removed,ten nodes positive, PEG, 30 RAD tx, 1998. Scans clean.30 HBO tx-Massive dental work 07-08, ORN present 2009.
#52839 09-10-2005 05:36 PM
Joined: Nov 2002
Posts: 3,552
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You can't just have your teeth pulled. We have a lifetime risk of ORN. You will have to get HBO first. I would be seeing a periodontist if you have gum disease.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#52840 09-13-2005 06:48 AM
Joined: May 2005
Posts: 24
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Gary,
Yes, I realize that I shouldnt pull them, but I am so frustrated between fighting with the insurance and the constant care that I sometimes wonder if thats going to be the end result. I am going to a dental oncologist next week for a consult, so I'll see what he has to suggest.Maria


Maria 33 when diagnosed with SCC, partial glossectomy with skin graph from thigh,rt side nodes removed,ten nodes positive, PEG, 30 RAD tx, 1998. Scans clean.30 HBO tx-Massive dental work 07-08, ORN present 2009.

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