#52456 12-22-2007 08:44 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hi Karen! When was your birthdays? I know what you mean about a loss...I still miss my brother terribly, this January will be 9 years...still bothered by his empty seat and my Aunt Lauren's-who was only 5 yrs older than me, best friend, gone for 7 now. You are so right in what you said. Thank you!! Love, Donna Been thinking about you!!
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2006 Posts: 93 | Donnarose,
Just checking on you.
Maggie
caregiver to husband right tonsil stage 3 35 IMRT TX completed 1/5/2007 PET Scan clear 3/07 biopsy 9/07 clear 1st yr PET scan 12/18/07 clear
| | | | Joined: Nov 2007 Posts: 45 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Nov 2007 Posts: 45 | Hi Donna: I just e mailed you and am so sorry for it!! I should have read your entry first!! You are going through a lot with your mom. I am 68 so a few years older than her. Divorced about 20 years ago but my 25 year old granddaughter lives with me and my youngest son just across the street. Both very supportive. Plus I still work. Sounds like your mom is depressed- try setting some simple goals with her so she can put her mind on something else, also let her do all she can for herself before you step in. I know my first time around I had to get on my feet quick and keep working, I had no choice. This time I can afford not to work but am going to try to continue after my treatment. Reading your entry answered one of my questions that I had about the burned tongue. Sounds like she is having the worse of it. Maybe the brac treatnebt is worse that the daily rad treatments. As for you - stay strong and don't be afraid to ask for help and support. Dont't feel guilty about your feelings, I have worked with the elderly for years and see families go through this quite often. Do something for yourself. We have caregiver support groups here in Flint, maybe a group like that would help. Remember if you don't take care of yourself you can't be there to take care of your mom. Venting your feelings is a good way to release your anxiety and fears. God bless you and your family. Connie
con
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Life is tough donna as you well know, but we have to face it head on and make the best of what there is. I lost my best friend to cancer 1 yr ago on New Years morning and he did put up a good fight , but lost. Lost my mom to it too just when she was coming out from losing my dad. I hope I have the courage to keep the fight going this time and can kick it's a-- again. You are doing such a good job with your mom, that I admire you big time. I am going to be 72 the 21st of Feb and plan on a few more just for the pleasure of making my kids miserable LOL Was married for 43 yrs and got divorced. I want to outlive her so she doesn't get my Insurance and make her more miserable than she is. LOL Have a great day all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hi Maggie, Doing so much better! Thank you for checking on me
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hey Connie, No problem. I think having imrt, Erbitux and then brachy immediately after fried her mouth. Really think brachy alone won't be as bad. Mom has become so much more independent, each day she tries to do more and more alone. I haven't been able to let go all the way yet-it's hard as she is still so fragile emotionally at times. She wished you much luck and said she would be happy to speak with you. Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Jim, LOL! Has anyone told you that you are a real piece of work??
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Jim, you really made me laugh, too! I was only married 26 years and got divorced but I outlived my ex and got his insurance!! I don't mean to sound insensitive, because when he died, I did feel badly. He had quit drinking and gotten to be a pretty nice guy. His #2 wife (or..widow) is nice, too.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Anne-Marie,, I sure would like to outlive her. That Ins is a nice chunk of money and I would caah it in , pay for my funeral and then just go enjoy the rest of it. LOL and no,, no chickies to help. Man I lie good. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | LOL you are ALL 2 funny ..however the husband and I do Not have life Ins ..somthing I should consider huh ?
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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