#52446 12-10-2007 12:13 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Oh boy Donna, Yet another example of docs who just have no idea  Or seem not to! I hope he took his own Ritalin, then gave you a prescription! Did you say 'Hell no, I just have a touch of indigestion'??? Bren x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#52447 12-10-2007 12:59 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hey Donna,
Sounds like he's in the wrong profession. So did he do anything for you?
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#52448 12-10-2007 02:19 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Bren and Jerry,
No he didn't do anything, after some back and forth questions, I told him I would be fine and left. Dealing with him was just so frustrating. His whole demeanor turned me off. Kind of odd how I felt better walking out, than I did upon arrival. I am disappointed his P.A. is no longer there, looks like I'll be shopping around for a new PCP. His staff is wonderful, which normally isn't the case-at least not in my experience. I talked my parents into getting a new pcp last year, they went with this group--well, what used to be a group--and it seems like his practice is falling apart. I can't help but wonder if everything is ok in his personal life as he used to be so on top of everything. Oh well, not my concern-right? I think I have enough going on.
On the upside of this thread--my mom seems a lot better. Still very uncomfortable with mouth ulcers but in general more with it, and trying to go on and about as usual.
I wish you all could have met my mom pre-cancer...she is such a fun-loving lady,who loves to carry on and dance around. She took (continues to) take pride in everything. I do hope and pray that she can be the person she has always been again soon.
Back to decorating!
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52449 12-10-2007 02:19 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Bren and Jerry,
No he didn't do anything, after some back and forth questions, I told him I would be fine and left. Dealing with him was just so frustrating. His whole demeanor turned me off. Kind of odd how I felt better walking out, than I did upon arrival. I am disappointed his P.A. is no longer there, looks like I'll be shopping around for a new PCP. His staff is wonderful, which normally isn't the case-at least not in my experience. I talked my parents into getting a new pcp last year, they went with this group--well, what used to be a group--and it seems like his practice is falling apart. I can't help but wonder if everything is ok in his personal life as he used to be so on top of everything. Oh well, not my concern-right? I think I have enough going on.
On the upside of this thread--my mom seems a lot better. Still very uncomfortable with mouth ulcers but in general more with it, and trying to go on and about as usual.
I wish you all could have met my mom pre-cancer...she is such a fun-loving lady,who loves to carry on and dance around. She took (continues to) take pride in everything. I do hope and pray that she can be the person she has always been again soon.
Back to decorating!
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52450 12-10-2007 03:01 PM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Hi Donna,
Glad to see that your mom is doing better. I think seeing her trying does more for you than any medication they could give you.
Hope things continue to improve, even if only a little bit every day.
Hugs,
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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#52451 12-10-2007 04:25 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Donna...thinking of you and your Mom...SO glad to hear of some improvement! Keep holding on!
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#52452 12-10-2007 06:46 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 |
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52453 12-13-2007 06:06 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | What a great group of people we have here.. You and others supporting those of us with OC and those of us who have it.. I think god will bless the givers for their kindness and patience. I have seen personally what you go thru.. Hope your mom has a great Christmas with you and your family... Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#52454 12-13-2007 09:36 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thank you Jim.
I think it goes both ways...watching my mom some days awes me. I can see the pain she is in and yet, now that she is feeling more like herself again, she fights so valiantly. I just read your other post about your tongue, what you OC heroes go through is tremendous. The fears alone would do me in.
My mom will celebrate her 64th birthday this Saturday. I am so proud of her, I am so blessed to have her as my mother. I love her with all my heart.
I hope you have a Blessed Christmas also.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52455 12-20-2007 09:22 PM | Joined: Jul 2006 Posts: 75 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jul 2006 Posts: 75 | Better late than never!?
I am so proud of you, and upset, and reminded of what an f'ed up thing cancer can be. I was thinking of you and your mom and dad, and family ,your house decorated for Christmas and I was thinking of my dad and our situation. I feel like everyday, now looking back, was Christmas. I cry just thinking about how I would call my dad for for holidays, and our birthday- it was on the same day-and now it is quiet and somber, and it is barely the holidays. I don't want to bring you down, I want to bring you up. This is such a precious time for your family, I would like to remind you of how precious, and annoying, and upsetting it may be, you might not have this again. When it is gone it is very, very much a gift in many a weird way. I swear it will echo for all your eternity, so try to be in the moment, for them, and then it will be about you, with all my love and prayers Karen
PS EVERYDAY IS CHRISTMAS
karen and dad
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