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#52347 10-30-2007 10:32 AM
Joined: Feb 2007
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Cookey Offline OP
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Spent Friday night tossing and turning just waiting for the time to get up and set off on my journey back to Robin.It was a wierd feeling knowing there was not going to be a smiling face and loving arms waiting for me and i was wound up like a spring when i set off.
Luckily the traffic was minimal and i settled comfortably into the long drive ahead,until i was suddenly overcome by the strangest sensation of disorientation.I slowed down and tried to take stock of the passing landmarks but i just didnt seem to be where i expected to be.
After a few minutes i saw a signpost that told me i had travelled nearly 35 miles along the motorway and i realised i had no recollection of one single mile of it.
I wasnt aware of being distracted,but as the journey passed, my head just filled with pictures that i didnt want to be there.Horrible visions and memories that meant me driving a good part of my journey with my vision blurred by tears i just couldnt hold back.

I drove through the village and past our flat feeling calmer ,and when i walked into the pub where i had arranged to meet cousin Daved ,i was engulfed in a wonderful warm welcome from all the people in there,who seemed genuinely pleased to see me.

My next stop was to see Robin and plant the two two minature Photinia (Little Red Robins)i had taken with me .It felt surreal and totally ridiculous that i was standing in the middle of a cemetry VISITING my husband.Surely we should have been cosied up in our flat exchanging hugs!!!

I drove to Paul and Carolines and as Paul opened the door and pulled me into his arms i almost felt relieved.Paul is a mirror image of Robin,and for one brief moment i felt as if i had him back,but the still raw grief on Pauls face remimded me that he was just his brother and grieving just like me.

Pauls wife went out that evening and left us alone,and we talked for hours,and it was good.
Paul has been in a very dark place and felt no one understood how he feels,but a few hours with me and i think he realised that he is not alone with his feelings,and it did us both good.

Sunday dawned dark,windy and raining and that was the weather for the whole of Robins birthday .
Sunday lunchtime saw a great gathering at the pub for the dedication of his memorial bench complete with beautiful bronze plaque and a helium birthday balloon tied to it.And the afternoon saw the memorial service in the village church.

This is a special annual service held for the families of all the people who have passed in the last twelve months and was preceded by afternoon tea in the church hall.
From the moment i set foot in the church i felt every bit of self control i have exersised over the last twelve weeks evaporate.Every hymn,prayer and reading was aimed at the grieving and those suffering loss,and all the tears i never shed at his funeral fell in buckets and buckets,and when it came time to step forward and light Robins candle i was a total mess.
As soon as it was over i fled to the pub garden and sat on his bench for an hour in the torrential rain till i was soaked to the skin and frozen to the marrow.

Robs friends were all waiting for me and i was welcomed with warm towels and a double brandy, and then i just let them work their magic of story telling,laughter,reminiscing and love,and i felt calm and at peace.

Monday i drove over to the hospice and as the door shut behind me i felt as if i had come home the warmth and peace just overwhelmed me and i felt truly close to him for the first time in weeks.I sat in the garden with his tree for a while,and as i was leaving one of his nurses spotted me and came over.She was so pleased to see me and insisted that she went and got Jane ,Robs special nurse who she said would want to see me.
Jane had to go on holiday the day before Rob died and he was devastated,and she tearfully told me she thought about him all the time for the first day she was in Spain,and woke early on the Sunday morning and walked down to the beach to sit.
At 5 am she saw the most beautiful sun rise and photographed it because it was so spectacular.
When she returned to work she read the report on Robins last hours only to realise that he died at 5am on the first Sunday of her holiday.She truly believes it was a spiritual message,and i thought it was magical.

Monday night i went to dinner with all our friends who had shared the journey with us,and today i drove to the village and went into the pub garden.I picked up the lead weight on his birthday ballon,cut it off and watched it float away in to the sky.Then drove home.
No tears,but a lost feeling that i dont know where home is any more,but a definate reaffirmation of the love and laughter my wild boy still creates even in death.

I was a caregiver,now i have to be a survivor out of love and respect for the man he was to so many.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#52348 10-30-2007 10:56 AM
Joined: May 2007
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Oh Liz---fabulous!
So glad for the people there, for your ability to cry, for the caring you found, and afraid you wouldn't, from those 'closest'.
You ARE a 'survivor' and from now on babe, you're just going to be 'YOU'!! Rob would be proud of you! He knew how strong a person you were from your solitary years before you lost your heart---then in later years, a part of your whole life-to him.
Woman--I'm so pleased for you, which sounds wierd when it was so obviously sad! (can anyone tell me how to spell wierd correctly??)
Stop making me cry woman---next year, we go back and let off some more balloons--yup--both of us!!
Love Bren x


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#52349 10-30-2007 10:58 AM
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P.S. Bring on the man-size Kleenex Ultra-Balm tissues and double brandies!!!!
x


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#52350 10-30-2007 01:09 PM
Joined: May 2007
Posts: 231
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I am very proud of you Liz. You were strong when he was here and you are still that strong lady you were then. Keep your chin up sweetheart and know that we are all here for you.

Billy


Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
#52351 10-30-2007 03:47 PM
Joined: Feb 2007
Posts: 1,940
Cookey Offline OP
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Bren thats a date!!!

Billy bless you hun xx


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#52352 10-30-2007 05:14 PM
Joined: Jun 2007
Posts: 510
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Liz...your posts always make me cry, and my heart hurts for you with every line read. I pray that if I ever lose my Buzz that I will somehow to strong enough to exhibit the same grace and poise that you surely have displayed during your long trial...I can say nothing more than you have been the greatest inspiration to me. I sincerely hope that you will find the peace you deserve.

Lois


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#52353 10-30-2007 11:35 PM
Joined: Feb 2007
Posts: 1,940
Cookey Offline OP
"OCF across the pond"
Patient Advocate (1000+ posts)
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Dont cry Lois you have so much to celebrate so lets have smiles all the way

much love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#52354 10-31-2007 04:34 AM
Joined: Jan 2004
Posts: 1,116
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Liz, thank you for sharing that beautiful post with us, God Bless, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#52355 10-31-2007 04:08 PM
Joined: Apr 2007
Posts: 794
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Liz,
You never cease to amaze me. You will forever be my hero.
Love,
Donna


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.

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