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#5185 03-21-2005 02:15 PM
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One problem we have often had with my husband is that when I want to talk bout big issues, he is thinking about the small, day to day or minute-to-minute problems, and when he is ready to discuss life philosophies, I can only think about how to deal with the mucous in my throat right now.
Maybe if Harry could concentrate on controlling the few small things that he can control right now, the long-term big issues would be easier to deal with, or not deal with, at the moment.
I am really saying the same thing as Sue in the previous message: this may be the best he can do now. I know it is hard for you, pessimism is contagious.
All the best - Leena


scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04
#5186 03-21-2005 04:33 PM
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The loss of control is a real issue, and a reality that religious or not, is often shocking to those who encounter it head on. In my own experience it was one of the many things that I mourned as a loss. That transition took me through loss, anger, frustration, and finally acceptance. This path has been reiterated to me by individuals on both sides of the religion issue so it seems a universal experience. Whether you believe that things are preordained by a God, or you believe that we are froth on the wake of life, control would appear to be an illusion in either regard. In either perspective it is nothing more than castles built on sand. Acceptance of life's nature, whether from a spiritual perspective or existential perspective, is what allows balance in dealing with the ever-changing nature of our existence.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#5187 03-21-2005 06:19 PM
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Brian,
That was exactly what I needed to hear. I think you are correct and the most difficult lesson is that I never really had the control I thought I did and neither did Harry. We are dealing with that harsh reality in very different ways.

I have always somehow believed that I was in control of my life... all of the things that come in and go out... but the one thing that any major illness can teach you is that control is an illusion that we create for ourselves so that we can maintain some level of order in our lives. At least it is for me.

Now we struggle together and apart to cope and understand what is, what was, what might be, and to what extent we can control any of it.

I think that the idea of control goes to the heart of any faith be it God or anything else. Even sometimes love between 2 people.

I know that in time we will learn and grow and I am really hoping that in a year or two I will be able to speak of the wonders of our lives such as those who help people like me do now.

I can never express in words how eternally grateful I am that you created this place. I am sure that you do know that but it can never be said enough.

With Love,
Cindy


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#5188 03-21-2005 06:21 PM
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I like this thread, because there are so many ways to view life, approach life, live life & I for one have a better life value since cancer. I do remember fighting completely everthing I could through treatment just to have some false sense of control. It got me through, good or bad. I do hope Harry can find some peace once in awhile for his & your own sake & like others have said the worst will become better & life will again have some sense of normalcy.


dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
#5189 03-22-2005 03:39 AM
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I like this thread too. And I too believe there are so many ways to view life. There is a wonderful philosophical piece on living life after cancer written by Brian Hill. I'll see if I can find it & post the url here. - Candace


Sister of guy w/base of tongue cancer, Stage IV, Dx 4/03, finished Tx 9/03
#5190 03-22-2005 07:22 AM
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I'd like to recommend a book that has been helpful to me: "The Five Things We Cannot Change and the Happiness We Find By Embracing Them" by David Richo. He does draw upon spiritual teachings for resources, models, and inspiration.


Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
#5191 03-22-2005 01:50 PM
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I am always nervous if someone thinks I have said something profound...usually it's something profane and they have just used the wrong word to describe it!! But now my interest is up. What could I have said that you remember almost a year later.... if you find the URL send it to me please.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#5192 03-22-2005 02:26 PM
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Brian: I don't have the URL but I do have the date. It was posted on 19 July 2004 and I emailed it to my brother because he was so angry & depressed about his life after cancer. One of the statements I particularly liked is "Once people have gotten through treatment, they can only be victims if they choose to allow it. Everything that I was doing before I saw the light, was self-destructive and counter productive to getting on with my new life. My different life, my life with limitations, my imperfect situation." I am hoping my brother reaches that realization. It was a very good, helpful article.


Sister of guy w/base of tongue cancer, Stage IV, Dx 4/03, finished Tx 9/03
#5193 03-22-2005 04:01 PM
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Rock on you guys!! I'm so impressed that I was dead wrong on this one.
I agree, this thread is enjoyable.
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#5194 03-22-2005 07:42 PM
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My own take is that the danger zones are the extremes. If we think we are in control, we are in for a surprise when life goes a different way than we were planning. But it is awfully hard to function in complete chaos. I worked with a hospice patient once who told me that, when he looked back at his life, seemingly random things seemed to be part of an unfolding pattern. There are times when we may not be able to see two feet in front of us, but I think it still helps if we try to find our center and stay balanced.

Lawrence


Co-caregiver for friend with T2N2BMO squamous cell carcinoma of oropharynx.
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