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#5175 03-19-2005 09:48 PM
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netteq Offline OP
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Tell me what you think this means please.

We are dragged along the journey to a destination unknown in a world where control never really exists for the benefit of no particular thing under the guise of chaos without rhyme or rhythm as abstract as creation and the beginning of all can ever be.

Thanks,
Cindy


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#5176 03-19-2005 11:03 PM
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Sounds like something an atheist or agnostic would say. It makes me very grateful that I personally believe that there is too much order in the universe to support the chaos theory. Conversely I believe that everything happens for a reason or purpose or is a consequence of an action or reaction.

It doesn't sound like a thought that would lead to much hope. But now I'm curious - what does it have to do with cancer?


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#5177 03-20-2005 08:40 AM
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Ditto what Gary says.


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#5178 03-20-2005 03:08 PM
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netteq Offline OP
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Just something I read after Harry's treatments started and I just wasn't sure what it meant.

It was a philosophical thing I was reading.

It was in reference to loss of control and what we can and can't control in our lives. Not just cancer related but any kind of long term thing like cancer.

It just made me think and I was curious about what others might read into it.

Thanks,
Cindy


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#5179 03-20-2005 04:36 PM
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Cindy: I am an atheist and actually that statement sounds to me like something a fundamentalist would say. It is saying that there is "something" out there that is dragging one along, a god if you will, to a goal that is unknowable to us humans. Kinda like the saying that "god moves in mysterious ways." Anyway, that is how it sounds to me. That said, I agree that it is not a very helpful/hopeful thought to muse over, but the issue of loss of control is very real to cancer patients, terrifing in fact. For my brother it was and is a big issue. It certainly seems that Cancer takes over your life, whacks your dreams aside & you have to cope with the consequences.

I personally would recommend more positive thoughts, like imaging you can get your hands on the cancer and imaging squeezing it, slowly, firmly, to death. Imagine Harry laughing, 20 years from now, at a family reunions, holding his youngest grandchild, named for him. Hold that thought!


Sister of guy w/base of tongue cancer, Stage IV, Dx 4/03, finished Tx 9/03
#5180 03-20-2005 05:12 PM
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netteq Offline OP
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Candace, it is interesting that you mention the control thing. Harry and I actually had a fight about that today. He is angry and frustrated and I understand why but the way he is dealing with it is not good.

I tried to talk to him today about understanding that we have to find a way to live our new life and put the old life to bed. He just got even more angry.

I know the feelings. All to often I want my life back and I am not doing such a hot job at coping with the loss.
The hospital gave me an article that was written by a woman who has breast cancer and has had 3 recurrences. It was a very positive story and enlightening. She says that the world has always been chaos and we just trick ourselves into believing that we have control over it. I think that she has a point. A point I may never have conceded had we not been forced into the "C" life.

Thanks,
Cindy

PS... I am a Taoist which is why I am always submerged in my philosophy.


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#5181 03-20-2005 05:21 PM
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I would suggest closing this thread. Anyone can make that statement mean anything they want it to mean. I can see this easily turning into a God/No God argument. I know it was my first instinct. So, can we close it?
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#5182 03-20-2005 08:27 PM
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netteq Offline OP
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I wasn't necessarily asking for religious interpretations although it is one's right to look at it that way, however if it offends someone I apologize. It was not my intent to start a religious war.

I am just looking for answers to questions that I suppose are unanswerable. Like why him? Why now? etc. etc.

I imagine I am not the first to be asking these questions nor will I be the last. I spend everyday trying to encourage my husband to continue this fight (which is getting harder and harder each day because everyday that passes he sinks further and further into his own inpenetrable fortress) and I guess I am just searching.

My husband is not a positive person. He used to be many years ago, but the last couple he has been very pesimistic about everything. I am afraid that he is not like most of you. He does not look at this as a battle to be won. He looks at it as if the enemy has already won. I spend every waking moment trying to save him from himself. Do I have the power to do that? I don't know but I am not ready to give up trying.

He won't look at this site, won't talk to other survivors, won't talk about how he feels to anyone. I can see it is eating him but he just closes up and shuts everything and eveyone out.

The statement can mean anything anyone wants it too and it was just that that I was trying to solicit. To see the world and this disease through others eyes. It is helpful to me and my husband to have a different view of things. It is far to easy to become wrapped up inside this little isolated world we now live in so I reach out to others in order to hang on to the knowledge that the terrible lonliness that we are both feeling does not really mean that we are alone.

I kind of thought that was what we were here for.

Once again I apologize if I have ofended anyone.

Thanks,
Cindy


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#5183 03-21-2005 03:17 AM
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Cindy,
You didn't offend anyone. Interpreting statements such as you posted could easily lead to a God/No God debate and Brian tries very, very hard to keep religion to a minimum. We have lost posters because they were offended by the overly zealous religious tone of some posters or by another posters need to state there is no God. The board isn't meant for that type of activity.
Concerning your husband, him withdrawing isn't that unusual when dealing with cancer treatment. Now may not be the best time to try and talk to him about old lives and new lives. I'm sure his mind is controled by one thought right now, and that is getting through treatment. When he feels better, and he will, is when he will begin the process of grieving his old life and accepting his new. I think Harry is VERY MUCH like alot of people on this board. I know Gary will admit he was a bear during treatment and Brian himself felt like he was not going to make it. Only Harry can decide how he is going to handle getting through treatment. He has lost all control of his life and feels horrible. He is getting to the end and sooner then you think both of you will be in a better place. I wish there was more I could do for you but my best advice is to remember that what you are going through has been done by thousands before you and your feelings are shared by many.
I hope you understand better now why I felt we needed to close this thread.
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#5184 03-21-2005 06:31 AM
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I was pesamistic thoughout my entire treatment. I was a vomiter and was dehydrated and not even able to hold to hold water much less the liquid meal. I was miserable andlost 80 lbs. which made me quite anemic looking and weak. I hid in my room and resigned myself to the "inevivitable". I'm relaying this because I'm still here . I have survived 2 years and life is pretty good. When I prayed, I prayed God's will be done..but I thought that was for me to pass on. But obviously it was not . Some people need to deal with the horror of cancae from the worst case scenerio, and I don't think it dampens your chance for survival,provided you keep to your treatment plan. I couldn't focus on life after cancer I just had to get through the day. Noe I'm in school, doing things with my husband and 12 yr. old daughter and my 5 yr. old grandboy. So don't assume your husband has lessened his chances, this may be his way to control a situation that is too big to handle any other way for him. I know it is hard for you,as it was for my hubby but he carried the hope for both of us. Keep the faith.
-Sue

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