#51605 07-05-2006 02:37 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Beware the Ides of March-Greeks bearing gifts- AND well meaning relatives traveling 750 mi. to "give you a break" from caregiving.  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#51606 07-05-2006 02:42 PM | Joined: Feb 2006 Posts: 115 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2006 Posts: 115 |
Michele, caregiver to husband, Jesse, SCC diagnosed 1/5/06 unknown primary, lf neck mass >6 cm. Chemo (Cisplatin 2x; Carboplatin & Taxol 2x) & XRT radiation 39X ending 4/4/06. Rad neck dissection 8.5 hrs 4/13/06. 30 HBO treatments Fall 2006.
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#51607 07-06-2006 03:55 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Gotcha,
We didn't evedn tell my family about the problemn until I was in remission. Boy, were they pissed, but we felt it best. The last thing my wife needed was some of my relatives coming to "help"
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#51608 07-06-2006 01:56 PM | Joined: Mar 2006 Posts: 23 Member | | Member
Joined: Mar 2006 Posts: 23 | wow I'd give anything to get some help from my family! | | |
#51609 07-06-2006 02:30 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dear Guila, How much help you get very much depends on who the family is and what physical shape and mental frame of mind they are in. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#51610 07-06-2006 03:05 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Not everyone's family is helpful and that's worse than having no help at all because it drains energy when you have none to spare. Hang in there Amy, eventually they will go home. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#51611 07-07-2006 08:30 AM | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | My heart goes out to you Amy. I have been reading your posts and know you are going through a LOT to say the least. You are one amazing caregiver, wife, and woman. I admire you so much. Although you don't know me, I have been keeping you and John in my prayers on a daily basis. Hang in there Amy. I wish I lived closer to you because I would be there to help out in a second.
Hugs,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
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#51612 07-07-2006 02:15 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dear Gulia, please accept my apology for a hasty response to your July 6th post. I was not in a very good frame of mind right then. I realized later that your post sounds like you need some help. Can you share more about your situation? Maybe some of us can offer some hints or possible solutions to ease your burden. I know we would like to try anyway  Thank you JoAnne and Shelley. One day at a time. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#51613 07-07-2006 03:09 PM | Joined: Mar 2006 Posts: 99 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Mar 2006 Posts: 99 | Amy...Hang in there. You are in the battle of your lives right now. John and YOU need to come first..do not hesitate to let people or FAMILY know that if they need a reminder.
All MY BEST
Kerry
Kerry/wife of stephenm
StageIV - Base of Tongue T4N0M0
XRT x42 / Taxol and Carboplatin x4
Tx. Finished 5/08/06
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#51614 07-07-2006 09:31 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Dear Amy,
I am usually not a blog reader, but was drawn to yours this morning during one of my "wake up in the middle of the night and can't fall back to sleep events". What else do I do, but go to the forum.
You sure are one strong lady! My respect and admiration for caregivers and you especially, has grown tremendously tonight. They say that people draw strength from depths they do not know they have and you surely are one of those people.
Although I will be away for 2 weeks starting Monday, please know that I will be thinking of you and John during my vacation and praying that John's situation turns around that you have some good news posted when I return.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#51615 07-08-2006 04:20 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Thank you Jerry, and have a great vacation. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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