#51071 03-01-2005 03:06 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hello Amber, That is positively greatn news. Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#51072 03-01-2005 07:36 PM | Joined: Oct 2004 Posts: 1 Member | Member Joined: Oct 2004 Posts: 1 | Hi, Amber:
This is my first post. My husband has just been through tonsil cancer treatment with 2 surgeries, chemotherapy (Cisplatin) and 30 IMRT radiation treatments. We didn't want to get a PEG tube but he was losing so much weight we had to do it about 3 weeks into the treatment. The tube was a godsend in keeping him from wasting away, also necessary to take pain meds. He had it for about 3 months. If your Dad is already in pain and having trouble swallowing, you should ask about having a tube installed. Good luck on the dental work. It's important to have it taken care of before radiation treatment starts.
I wish you and your Dad all the luck and good vibes in the world. My husband Chris is 49 and it's taking him some real time to recover from the treatments. You and your Dad will need all the support you can get from friends and family. One thing that has bugged Chris is that he feels like some family members only focus on the f the cancer and don't talk to him like a person anymore. It takes a balance. Friends are wonderful and they want to help but may not know what to do. Take advantage of offers to drive, cook, etc. You will get tired if you are the main caregiver and you have children to care for as well. Find a support network for yourself so you can stay functional for your Dad and the rest of your family.
Best wishes Amy
Chris smoked for about 30 years but finally quit about 10 years ago. Please encourage your Dad to quit if he's still smoking.
Amy, wife of Chris left tonsil dx 8/04. T2N3M0, Stage IV. Tonsillectomy, L+R neck dissection, 6 L + 1 R nodes positive. Cisplatin and concurrent IMRT Radiation x30 + Amifostine. Followed by 4 weeks Erbitux (monoclonal antibody) ending 1/05).
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#51073 03-03-2005 10:53 PM | Joined: Mar 2005 Posts: 1 Member | Member Joined: Mar 2005 Posts: 1 | Hi Amber, My 39yr old husband was Diagnosed in Sept 04, with stage 4 Nasopharyngeal cancer. He still has 3 more cycles of chemo to go and i couldn't imagine how much more weight he would have lost if not for the peg tube. (20kilos already). | | |
#51074 04-17-2005 02:34 PM | Joined: Apr 2005 Posts: 2 Member | Member Joined: Apr 2005 Posts: 2 | Hi Amber, This is my first visit to this site and when I read your post, your story is almost exactly like mine! My dad was recently diagnosed but the difference is that he is on the west coast and I am on the east coast. He hasn't really done a great job in telling me a lot of the details so I am sort of lost. Thanks Terri
Terri G.
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#51075 04-17-2005 07:21 PM | Joined: Apr 2005 Posts: 44 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Apr 2005 Posts: 44 | Hello, My Dad has had Non Hodgkin's Lymphoma (NHL)for 12 years (he's 75) with surgery, radiation and chemo with long periods of remission in between. Last week he was referred by dentist to oral surgeon who took biopsy of one of two spots on his tongueand all he knows so far is "it's malignant." He finished his most recent round of chemo for the NHL on January 28. He & Mom are in Chicago area, I'm in Kansas. He goes for another? biopsy with ENT doc on Wednesday. I am totally confused and they are so overwhelmed they don't make much sense on the phone. Wouldn't the chemo have treated the tongue cancer as well as the other lymph nodes (in his stomach) that were found in the course of NHL treatment? What docs/treatment centers are best in the Midwest? I am planning to go out there next week, but need some advance info. This is a great website, by the way, and I so appreciate having it.
Daughter of 75-yr-old Dad with tongue cancer (T3NOMO) surgery and rt neck dissec 4/27/05; completed 27 X IMRT on 7/01/05; recurrance w/ surgical removal of another SCC tumor on 10/7 (he's also nonHodgkins lymphoma survivor since 1/94)
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#51076 04-18-2005 05:17 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Bellarte, You don't need to post the same thing in several areas. Don't worry if you post somewhere that isn't "right" we will answer questions everywhere. If you post in multiple places your answers will get mixed up.
Thanks
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#51077 04-20-2005 11:43 AM | Joined: Apr 2005 Posts: 44 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Apr 2005 Posts: 44 | Thanks, Mark...I'll get the hang of it.
Daughter of 75-yr-old Dad with tongue cancer (T3NOMO) surgery and rt neck dissec 4/27/05; completed 27 X IMRT on 7/01/05; recurrance w/ surgical removal of another SCC tumor on 10/7 (he's also nonHodgkins lymphoma survivor since 1/94)
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