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#50797 06-30-2004 10:38 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Thank you Susan,
I just thought the Flagyl was another antibiotic. Our cupboards are filled with Cipro, Flagyl and Leviquin and I don't know what any of them are but just that when my husband takes them its like poison to him. He gets horrible night sweats and he has a really bad reaction to them. I guess they are pretty strong medicines. I feel for you with all the medical problems that Ed is going through. I'm only 35 and my husband is 32 and I swear we are at the emergency room at least once a month for him (not to mention the times he's been hospitalized). The doctors tell him he has the body of a 60 year old (I'm not kidding). He is a Union Heavy Equipment Mechanic so his job doesn't help at all.
So between stressing about my mom and all my husband's medical problems and trying to raise a nine month old and clean the house and work full time I pretty much have my hands full.
You are sooo wonderful! I think that you and Ed are perfect for each other. God Bless you both.
Love,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#50798 07-01-2004 10:58 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Good news,
My mom went to the dentist today and I am going to copy and paste the e-mail I got from her today.....
Hi Honey,
I went to my dentist today and he was very pleased with they way my
mouth is healing. He said the bone that is exposed is dead and he hopes
that it will just fall off soon. He said to just keep taking the pain
medication and that the tissues around the bone look much better than
they did. If it was cancer they would not be getting better so he was
happy. He also said if you get that oxygen treatment that it feeds the
cancer cells and he has been doing this for over 23 years. It is also
very expensive. So he hopes my body will heal itself without those
treatments.
So I am elated and I also ordered that mouthwash for her that Brian posted about so I its gonna be a great 4th of July....
Love to you all,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#50799 07-01-2004 02:27 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Oh Dani! I am so happy for you and your mom! Wonderful news!
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#50800 07-01-2004 06:10 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | DaniJams,
It sounds like things are improving for your mother! I am so glad and I sure hope to see at least both of you in Las Vegas.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#50801 07-01-2004 09:47 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Dani
Thanks for the post.. super to know that your Mom's body is fighting back.. she's lucky to have a daughter like you..
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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